Posts

Showing posts with the label and alternatives to not giving up. NDIS Jargon

Disablity and Ablism.

Image
 So after the findings of the disability royal commission, we see that people are discovering what it means to be disabled in Australia and what the words we are throwing around mean and I discovered in cleaning up my blog and hard drive that I had this video on ablism, and it’s different for every person when they discover that they are disabled or start to identity with that labeled more and more as I realize that I have a TBI and have accepted it but I have only in the past  4 to 5 years accepted that a TBI is a disable and affects my life and the lives of the people around me as well. But what is ableism, it’s basically when people dismiss or invalidate a disability in assuming that most people can do things for themselves, and most people with a disability might have workarounds but some might need a lot of support to do very basic tasks. It heard much more about accessibility, so having places that are accessible is much more than a ramp to get in it’s  ooking at having sign la

Society and the social contract.

As we grow up, we get taught several things, learn through our experiences, and learn that in society we are expected to play a certain role.  So, for those who are female, we see that the life script is school, university or training working and marriage and then kids and a family. For Males, it’s the same script just marriage kids and family are optional. But for either gender, we see that people with a disability are supposed to play the role of learnt helplessness and to be childlike even as an adult. So, parents do flip this script and very firmly tell their children that disability isn’t an excuse and I know that for me learning what is an excuse and what is a reason is a very fine line as well, but we also then see able-bodied adults behave in very naïve ways and this sometimes can lead them to seek diagnoses as an adult. But the script that society wants us to play is the role of the victim and make that our identity. However, when we start advocating for our needs and st

The pension and the issues to get on it,

  Jake Lawes’ Disability Support Pension application declined despite being a double amputee | 7NEWS This is a really interesting article to look at and it shows again how people with disabilities are seen by society. As the afterthought and being a double amputee. Is a massive physical disability, it is a risk to many workplaces, but this is the issue though, with the rise of work-from-home jobs and the NDIS does he have the capacity to rebuild for some level of work?  I see in the article that he doesn't really have the capacity to work, so the pension is the best option for him but I see that the fight is not fair on him as well, as I I know that I had to fight to get on the pension myself as it does have medical as well as nonmedical rules as well so the rules do change and this is where my line of thinking comes into it about can he do some part-time work.    It's a very difficult concept but it shows that we are able to move forward as a society if we do have the right su

Talking about being high functioning, in society.

Image
So this is an interesting video and it's a topic that we need to talk about being "high functioning," with a disability doesn't mean that we aren't disabled.  So with this in mind a lot of people with conditions that others would consider a disability we see that it might not be the case for them, they might just consider it a medical condition or a different way of being and this is ok.  However being high functioning comes at a cost, a mental, physical, and fiscal cost and this is an issue for some of us due to not knowing where we "fit" do we "fit in at a day center. Do we fit in at a disability enterprise, where they go and work in a safe environment?  Or are they able to work and hide the fact that they are disabled this will vary depending on the person and the country they are living in? So I hid the fact that I was disabled for many years and we see that this is an issue now that I didn't ask for the help I needed and my family did a lot

Restrictive practices part one,

  This is a post that I have been putting off writing because of its potential content but it needs to be talked about, and discussed at length due to it being such a grey area and it needing defining in how these practices are used. So what am I hammering on about well, it’s restrictive practices. Reactive practices – I have a video on YouTube very generally explaining what it is and how they are used So I will do a couple of posts around this topic this post will start with what is a Restive Practice.   So from my understanding, they are any form of practice that restrict the person’s movement, environment, and the usage of chemical restraints as well as physical restraints.   However they need to be used within the context of what is called a positive behaviour support plan, this is a plan where a person is granted more and more freedoms as their behaviour improves through education and training,   this is where goal setting is really important as well, due to goals being li

The bane chronicles, an overview.

  Video details - YouTube Studio So this is my second attempt at YouTube and I hope you all like it this is a bit of a look into the bane chronicles, what do people think I will do a bit more videos if you like it, at times.  Looking to do more video content like this around the NDIS and what it is so if people would like to show me and comment on topics to cover please let me know. I  will be doing a post on the bane chronicles that should be queued up by next week let me know all am putting a link up to my patron page, please if you can donate there will be bloopers and behind-the-scenes clips as well as other topics covered that aren't traditional media.  Andrea Nunn is creating Blogs about Disability and Media Representation. | Patreon Also, I will be doing a bit more around other media and topics so let me know what you all like and how it works as well.  Let us know what you think by commenting, I hope that people like the videos and that I get better at presenting as we go. 

annieswonderlanda.blogspot.com

Image
So I have relaunched my YouTube along with the blog and guys this is the core of why I started this blog disability matters and it does mean a lot to people to be included and the scheme is facing a lot of challenges so I will be looking at this and I am as I said in the video going to talk about what challenges it is facing and how to stop this from becoming a problem.  I am still going to do media content but I am looking at branching out due to the challenges around the NDIS and we need people to speak up. Also please keep sharing the content and I hope to make this a full-time job I can't keep it going on my own so if you can comment or share it please do. 

Chain of gold The last hours book one. a review.

So I have just finished this book and it is a great read however I am a little bit confused about what is happening in it as I have followed this series most of the way through. It has got me through some very dark times in my life. Because I live with several chronic illnesses and haven’t had what most people would consider a normal life.   (this being for a woman a job marriage and rising a family). I live with eleplisy, high functioning ADHD, and a TBI as well as shojrins syndrome that severely limits my “functional capacity,” this is complex at times because I don’t “look,” disabled and that I need care that others don’t see as care and it can be expensive to get the medical care I need and I am on the pension.     I have the luxury of being on the NDIS though, it is complex however to navigate the system and on my good days I would love to have a “normal,” life this is where this blog comes in talking about disability and how we see the world. I see books not as a Young ad

Mangus and Alec the start of a deep dive into their relationship.

  I haven’t done a deep dive into Magnus’s and Alec’s for a while and I was quite green when I started blogging I haven’t done an in-depth look at this relationship except in the context of it being a place where both parties start to heal from trauma. So we see that they both have a massive amount of trauma in their lives and that they can recognize this and in a way we see that this is a good thing as some people including me have been in a very unhealthy relationships that turned out to be what we would call trauma bonds not love. Magnus’s last meaningful full relationship would have been with Camille Belcourt and that would have been an abusive relationship as she would manipulate him to do her bidding and we see that it was a very off-and-on relationship. [i] It essentially was coercive control of Magnus and this is more common than we would like to think with males it takes a very different look as it can happen when a relationship breaks down or he needs to be home straight

Disablity and life stages.

  What does self-determination look like in a person with a disability? It can look different to everyone and how people show it. However, some key differences need to be considered, as for people with disabilities there is generally a rough idea and goal posts of School – primary and high school Higher education - University, trade school - then if possible getting a driver's license, Moving out of home for jobs, studying, or moving in with a partner. For those who don’t know what to do going into a job, if possible Then dating and relationships – and where those relationships end up. Most would end up in a committed relationship. However, people with disabilities and I am talking about people with developmental disabilities, and in some cases physical disabilities there can be barriers that need to be considered, and in some cases they are. These can be, the day-to-day impact of their disability, so in the case of physical disabilities things that people take c