Annie in wonderland

   I am starting a new series, and I think it’s going to be highly relatable, for a long time I have suffered from poor-quality sleep, and as you can see from the title it’s going to be a bit obvious to what I am saying.   I have several disabilities and medical conditions, but then there are the things that I can control, as I am in a Sil house ( supported independent living), and due to me essentially being in a granny flat the first thing I can’t control is who is on a sleepover and if they come down or not as I do have some bad habits that I need to get out of, one has my phone in my room but I didn’t realize I have sensitive hearing and I can hear support staff doing final checks both upstairs and next door. I am trying to not reveal any sensitive information but it factors into why I am not sleeping well and having discussed this series with the head support worker we feel that it's ok to talk about the behaviour's of staff so people can see its impact and we can wo...

Hello, everyone! I wanted to take a moment to update you on what’s been happening in my life lately. A lot has been going on, and I’ve been reflecting on some of the changes, challenges, and growth I’ve experienced. ### Embracing Change and Finding Stability Over the past few months, I’ve been navigating significant changes in my routine and support structure. One of the biggest adjustments has been finding stability in my day-to-day life. As many of you know, living in a Supported Independent Living (SIL) home comes with its own set of challenges. I’ve learned that having a stable roster and a well-mapped-out day, week, and month is crucial for my sense of safety and well-being. When everything is predictable, it’s easier to relax and focus on personal growth. After all, if I don’t feel safe at home, where will I ever feel truly safe? ### Improving Health and Setting Boundaries I’m happy to report that my health has been getting better. It’s been a long journey, but I’m seeing positiv...

This is something that I have wanted to write about for a very long time but really haven’t had the guts to write about it and I know that I bang on about people with disabilities being abused and this is true, but we also need to talk about the flip side of this being, that Support workers do get abused at work as well. I need to put a really important point in here as well that have emotions and I have blowen up at support workers in that past but what is important is how you handle it and what is considered abuse differs from person to person but from a legal perspective it can fall into a couple of different areas.   I have taken this from Safe work Australia, and it also documents that home care workers are in a higher risk of abuse. W orkplace violence and aggression can be:  ·        physical assault – such as biting, scratching, hitting, kicking, pushing, grabbing, and throwing objects.     ·   ...

    So last night I watched the Netflix documentary Poisoned and I think I need to start out by saying something really important. I am located in Australia and we don’t have the food production monopolies and lobbyists that the USA does but it got me thinking on another random tangent, that is cleaning, don’t get me wrong we need to be on top of where our food comes from and I am going to start making major changes in my life around my diet and start making some documentation around it as I know diet is a major player in having auto immune diseases go into essential remission, before having to go onto very heavy medications that are used in cancer. But I as I do went down an adjacent rabbit hole and still haven’t reached the proverbial warren, that is food safety at home and adjacent to that cleaning as you can have a tidy home that is not clean and I know, as I have been that person and I admit we all get busy and we all need to work and families can’t have one person at h...

This is a post that I wrote in my head last night as I am in the middle of potentially changing supported living houses but staying with the same company and I can’t remember something heartbreaking. I can’t remember the last time someone physically said they love me, or I am doing good or congratulated me for doing something well, as my family often has concern for me, and I don’t see that my actions have consequences for other people. But please don’t feel sorry for me first and that my family and friends do they do it by there actions and this has lead me to some really interesting feelings of knowing I am an adult but at the same time feeling really alone in the world as I see my friendship group that are “ able bodied” go to work and have the arguments about the kids and I really feel like I have missed that boat on having a stable romantic relationship due to me not being able to really trust anyone and that actually includes myself and my support team in the house as they have...