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Showing posts with the label lived experience

Why Conversations Matter: The Story Behind Enabling Progress: NDIS Conversations

https://open.spotify.com/show/2dLRtagYg0ZQqizcjvvrgY?si=fa2a6dffbeca4c46   When people talk about the NDIS, the conversation often begins with change. A new announcement, a new policy, a new review, or a new headline appears and suddenly thousands of people are trying to work out what it means for them, their families, their supports, and their future. But the reality of the NDIS is much bigger than any single announcement. Behind every change are real people trying to navigate a system that affects their everyday lives. There are participants trying to understand what their options are. There are families supporting loved ones through uncertainty. There are support workers helping people achieve their goals. There are support coordinators working every day to help people understand not just what is happening, but why it is happening. This is where conversations become important. Because knowing that something has changed is very different from understanding the impact of that chan...

the dark side of advocates

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The Dark Side of Disability Advocacy: Inclusivity, Hierarchies, and Respect for Different Journeys Disability advocacy is a crucial movement that seeks to uplift marginalized voices, promote inclusivity, and ensure that the needs of people with disabilities are met. However, as with any movement, there are areas of concern that, if left unaddressed, can create harm within the very community advocacy seeks to protect. Issues like hierarchy, exclusion, and manipulation are all too common and must be discussed if we are to build a truly inclusive space for all. The Hierarchy of Disability: Exclusion of Hidden Disabilities One of the most concerning aspects within disability advocacy is the development of an unspoken hierarchy—where individuals with visible or more severe disabilities often dominate the conversation, leaving those with hidden or higher-functioning disabilities feeling excluded. This hierarchy is not only harmful but also counterproductive to the goals of true inclusivity. ...