Posts

Showing posts from November 12, 2023

What can I do with NDIS funding? Part one.

    I saw this on Facebook overnight as I suffer from what is [i] called Peripheral neuropathy and we can’t figure out where it came from and how to stop it, but it is nerve damage and it gets worse at night because there isn’t a lot I can do to stop it, I have tried medications but I am sad to say their side effects where worse than the pain itself. I manage it but some really basic means, a good diet, exercise, and at times forcing myself out of the house, to do things that I don’t want to do, basically being an adult and not over-relying on support workers, but it’s a really common question, that we need to start answering. The question   What can I do with my NDIS funding besides getting a support worker we are all starting to understand what a support worker can and can’t do the options for employing one and the housing options and providers are starting to move to be compliant with what the commission has said about, Housing, Food and providing the basics of life, and the us

a life more ordinary what does it mean lets unpack disability jargon

Image
 This is the first thing we need to know is what is an ordinary life as we have content creators and YouTubers as a legitimate career option these days, we are also seeing that lives are mostly lived online and people who choose to on their weekends go hiking, canoeing or fishing are called extreme, I know that there is such a thing as extreme hiking where you go long distances with very little prep and the city version is to go urban exploring ( generally at night or in abandoned palaces to find interesting things. In Australia we don’t have much scope for extreme hiking due to the heat and cold but long distance is definitely a thing, but we then get to what is an ordinary life when it comes to disability and this is straight from the NDIS website, about life more ordinary,  and how they use it to decide support’s and this then goes into we need to know what is a disability. “An ordinary life is a life where you have the same opportunities as people without a disability. An ordin

Choose and Control sometimes it can be a myth.

Image
 So Let’s unpack what I am saying here it’s not that Choose and control in disability support doesn’t exist at all, as it does but at times depending on where you are located it can be a bit of a myth around what you can do, as for some people having absolutely no limits placed on them can be dangerous even for people without disabilities. Some of the restrictions can be because of a couple of reasons and they can be as simple as behaviours of concern, a lack of impulse control, or the lack of cognitive awareness to be able to understand that their actions have consequences, and this leads to where restrictions as are needed to be put in place. But when it comes to disability accommodations it can get complex to get into the system simply, and even in a rural, regional, and remote area, there aren’t the disability accommodations that we know in other areas. So, to get into the system you need to take what is out there and this can be challenging as you might get the care you need h

OMG reaction time, lets talk about Ablism.

Image
 When I saw this clip, I was like this must be a setup but know it was a real reaction and I know that I am hypersensitive at times as well, and entitled, but to say that people who use wheelchairs aren’t paralyzed is just plain wrong and uneducated about disability. Both Strollers and Wheelchairs are mobility aids, and they are a tool. We see in the Clip that the person is suffering from a valid health condition known as obesity, but I am fairly sure that she would be a part of the body positivity movement, this body positivity denies one fact, that  health isn’t health at any size, you can be thin and very unhealthy as I was for many years, but to be obese we need to point out some difficult and challenging facts that there is a higher risk of, Heart disease Stroke Sleep apnoea High blood pressure Depression These are just a few and it’s not healthy to be obese at all, a little overweight in case you get sick I got told by my own health professional that it’s actually b