Life Update: Managing Health, Learning, and Self-Advocacy
Life Update: Managing Health, Learning, and Self-Advocacy This year, I’m focusing on getting my health back on track, working closely with my care teams to improve my daily routines, sleep, and overall well-being. Managing chronic conditions is complex, and while I’ve been lucky to have people in my personal life who support me—getting me to appointments, cooking meals, and helping me navigate everything—it’s still a long road. One of my biggest struggles is sleep . Chronic pain, neuropathy , and Sjögren’s syndrome make it difficult, and while I can distract myself during the day with content creation, crafting, and study, nighttime is another story. The best way I’ve found to describe neuropathy is: Imagine you’ve sat on an ant nest. They’re crawling all over you, and you’re desperately trying to brush them off. But because neuropathy is a nerve problem, you can’t brush them off. Then, your hands start burning and going numb. Since I have new readers, here’s a quick rundown of my ...