Annie in wonderland

When the Digital World Goes Quiet Modern society has quietly built a world where connection is assumed. The internet is assumed. Mobile phones are assumed. Online services are assumed. Digital communication is assumed. For most people, losing internet access or mobile service is frustrating. It might mean a missed message, a delayed payment, a few hours without entertainment, or the inconvenience of waiting for a service to return. But for many people living with disability, the failure of technology can mean something much bigger. It can mean the loss of independence. The loss of communication. The loss of routine. The loss of access to work. The loss of safety systems that most people never realise exist. The recent Telstra outage highlighted a reality that modern society is still learning to address: when communication networks fail, the impact is not evenly distributed. A person who can simply wait for a service to return experiences an inconvenience. A person whose daily independe...

This is a deeply personal post, and I want to start by saying thank you. To my friends, my family, my support team—you’ve shown up for me with grace and dignity, and I don’t take that lightly. Whether it’s through practical help, quiet encouragement, or just being a consistent presence, your support has helped me face something hard: the reality that I’m not functioning as highly as I once believed. Now, don’t get me wrong—I’m still high-functioning in a lot of ways. But one of my conditions, Sjögren’s syndrome , is progressing. And that’s hard. It’s a quiet, relentless reminder that I do live with disability and chronic illness, and that pretending otherwise doesn’t help me anymore. I’m working with all the right professionals—my doctors , pharmacist , and now a dietitian , too. (Pharmacists, by the way, are wildly underrated. They’ve helped me make sense of side effects and medication changes in ways that actually make sense in day-to-day life.) But even with all this support, ther...

    I am taking a break from housework as I am listening to the work of RD Lang he was a very controversial psychiatrist who did something amazing and it has a lasting legacy today and I am just diving into his work. His most famous work is the Kingsley Hall experiment, made famously but the film staring David Tennant called Mad to me normal and we see that what he did was transform psychiatrists from simply medicating people and turning them into zombies to taking them out of their shitty environment generally institutions and giving them dignity and living with them. He when looking through the lens of modern thinking he was really ahead of his time in the fact that he was able to see past the mental illness and see the person, to me and I need to do some more digging I feel that this was the start of person centred   care as we see that people need to be very aware of what is happening in the field of mental health and he didn’t see his clients as “ uncompliant” or ...

 I am studying at the moment but saw a post from a disabled creator on this platform talking about internalised ableism and I get that is a thing, as I know that I have it most of the time but where do we start to draw the line and say that we aren’t responsible for educating everyone we meet about our disability and that there is sometimes for hidden or physical disabilities a time to meet society’s expectations, for what we are about to do. We can’t expect the world to change for us when we aren’t willing to put in the work  and I know that this opinion will cop a lot of backlash but we need to be accountable to the best of our abilities and acknowledge how far we have come and we need to be thank full for what we have as we have more than the people who came before us and fought for us to have equal access and are still fighting for equal access, but what I don’t agree with is equity as this removes all the learning opposites and provides a space for learnt dependence and...

 So safety does mean different things to different people, for people with a disability there are extra things to think about given that people with a disability are more likely to be the victims of abuse and neglect from the very people who are paid to support them or even family who don’t know how to best support them.  This is a heartbreaking topic to talk about but it is something we need to start talking about because we are in disability pride month and we are still talking about the basics, of disability rights, the basics being, the right to privacy, the right to work, the right to relationships, and the right to freedom of movement, and the right to freedom of expression and the ability to socialize without judgment, but to have advice on healthy and unhealthy relationships. As well as the ability to feel safe in their own home, which could look like living in the family home, living with others in a “normal” share house, or living in disability services accommodati...

 I have done a couple of personal blog posts about mediation and manifestation, and I feel that these are important to share, but we need to be very aware that any type of mediation needs to be done safely. So, this is practical safety so having a safe space to meditate, I meditate to go to sleep, and I meditate in bed.  Some other safety aspects are if it brings up negative emotions having the fame work to be able to work through them as releasing the trauma might need specialist training and it might also trigger flashbacks or make things worse long term and this is where you need to have a religious or physiological framework to work within.  As every religion does have a practice of mediation, the Jeudeo -Christian religions or the religions known as the Abrahamic religions from my limited understanding do have set prayers as well, the most well-known would be a Christian praying the rosary. Or a Muslim praying to Mecca or a Buddhist meditating, and this is a framewor...