Annie in wonderland

  An open letter to support staff and I want to say that this is not all support staff and care givers but I have to express this frustration that isn't just mine alone it is at boiling point when we have asked for change and the only way to get it is to wear the labels with pride, dignity and to not give up the fight.  If your having a negative reaction to this letter I would ask you to open your mind and heart and question why, as this is my lived experence of having " well trained expert,"s caring for me in my own home.    Dear Support Staff I understand that this is your job and I am your responsibility, but can I tell you my side of the story and why in your words I don’t “engage,” It is on your terms because of a myriad of reasons that I can understand yet when I speak up, directly to staff I am considered the problem, I live to hear and yet I am needing to put up with clients you favor when I am needing help. You seem to have no situational awareness to how lou

  Picture this: you're stuck in a system that's supposed to support you, but all it does is fall short at every turn. Your needs aren't being met, your voice isn't being heard, and the frustration is building with each passing day. Enter manifesting – the latest trend in self-care – offering a tantalizing escape route from your troubles. But here's the catch: your troubles aren't just going to vanish into thin air. They're deeply rooted in systemic failures, conveniently overlooked by the glittery facade of manifesting. Let's shine a light on the elephant in the room: NDIS agencies. These are supposed to be the lifelines for people with disabilities, providing essential support and services to improve their quality of life. But what happens when these agencies fail to deliver? What happens when the funding dries up, leaving clients stranded in a sea of unmet needs? For many, manifesting someone out of their life isn't just about convenience – it'

  Hi all so it’s been a while since I have done a blog post and that is because I have been diving into life, but there have been some massive changes and these are great things the first one is that there has been a change of care staff in the house I am yet to meet one but I am assured that she is lovely despite being young. I have been connecting with my family and wider community as well and finally have some time to sit and write in between this I have been organizing and decorating my home and I have accepted that this is my home. However, I would like a holiday, so this is my next goal, also my community access care staff have been amazing despite having changes there, I have realised that Mark Twain was right the only thing certain in life is death and taxes.   This is money that needs to be spent to avoid pitfalls in the long run such as getting my life documents in order (my will, enduring power of attorney and advanced health directives) out from the public trustee and

n the realm of disability services, finding the right provider can make all the difference. Whether you're seeking support for yourself or a loved one, it's essential to identify providers who demonstrate integrity, empathy, and a commitment to their clients' well-being. Here, we'll explore the key green flags that indicate a reliable and compassionate disability service provider. Empathy and Understanding : A good disability service provider should demonstrate genuine empathy and understanding towards their clients. They should listen actively, acknowledge the unique challenges individuals face, and tailor their support accordingly. Look for providers who take the time to get to know their clients on a personal level, recognizing their strengths and preferences. Respect for Autonomy : Respect for autonomy is crucial in disability services. Providers should empower individuals to make their own choices and respect their decisions, even if they differ from what the provi

Introduction: Welcome, dear readers, to the colorful world of disability advocacy, where TikTok comments are as diverse as the challenges we face. Recently, a comment lobbed my way stirred the pot, criticizing my language and questioning the efficacy of support systems like the NDIS. Let's dive in, shall we? Addressing Ableist Language and Attitudes: Ah, the joys of being called an ableist! Apparently, terms like "lower functioning" and "higher functioning" are as passé as yesterday's news. Fair critique, but let's not lose sight of the forest for the trees. Instead, let's focus on a more pressing matter: the shocking prevalence of assault within day centers and the alarming trend of excusing known bad behavior under the guise of disability. Support Systems and Challenges: Enter the NDIS, our knight in shining armor – or so we're told. But wait, what's this? People falling through the cracks? Quelle surprise! Amidst the chaos, however, lies a

Support work is a complex dance of assistance, respect, and mutual understanding. However, within this intricate interplay, there lurks a troublesome specter: the "too posh to wash" attitude, which can manifest on both sides of the support equation. It's time to confront this issue head-on and pave the way for a more balanced and effective approach. Let's start with support workers. It's not uncommon for us to occasionally slip into the trap of feeling "too posh to wash." We may find ourselves hesitating at tasks we deem beneath us, forgetting that our primary role is to support, not to be served. But here's the wake-up call: if we're asking our clients to step up, we need to lead by example. Every task, no matter how mundane, contributes to the well-being of those we assist. However, if these tasks become overwhelming or too frequent, it might be time to consider alternative solutions, such as introducing a professional cleaning service into the

    So this has been on my mind for a while now and it’s the outright misinformation that is out there about disability and the NDIS, I am finding despite the chorus of content creators trying to educate people the legacy media seems to be louder and more persistent, but at the core lets be real the system is broken and we need to do better for everyone from support staff to Allied health professionals that write the reports to get us the funding we need at times that funding isn’t enough and then that is where the blame game starts around cost blowouts and people gaming the systems. So that brings me to the hairy end of the topic is the blame game and people thinking that participants have it easy( if you’re your decision maker it’s not) it can seem like a full-time job and this is where people get so wrong about who to blame as there is not an easy fix but there is several that are starting to emerge, the cost guide cap is a big one. Cracking down on dodgy providers and my person

Title: Navigating Resources: A Guide for People with Disabilities Introduction: Living with a disability comes with its own set of challenges, but it doesn't have to mean navigating the world alone. Fortunately, there are numerous resources available to assist individuals in leading fulfilling lives while managing their unique needs. From local libraries to online services, and from public transportation to healthcare programs, let's explore a variety of resources that can empower individuals with disabilities to live independently and thrive within their communities. Local Libraries: Local libraries serve as invaluable resources for individuals with disabilities. They offer a plethora of services including accessible materials such as large print books, audiobooks, and e-books. Additionally, many libraries provide assistive technologies such as screen readers and magnifiers, as well as dedicated staff trained to assist patrons with disabilities. Furthermore, libraries often ho

In a shared housing environment where several individuals reside, the dynamics can be complex, especially when support workers and caregivers are involved. For those receiving care or assistance, it's essential to foster a positive and productive relationship with these professionals. While maintaining professionalism is crucial, acknowledging the human element is equally important. Here are some tips on how to work effectively with support workers and caregivers in such settings: 1. Establish Clear Communication Channels Communication is the cornerstone of any successful relationship. Establishing clear channels of communication from the outset is vital. Ensure that everyone understands how information should be relayed and how feedback or concerns can be addressed. Regular check-ins or meetings can help facilitate open communication and address any issues promptly. 2. Define Roles and Expectations Clearly defining roles and expectations for both parties is essential. Understand w