Annie in wonderland

  I am safe was the words I uttered just now at 7.30 pm at night I don’t need to climb into bed and hide anymore. I am safe I   can be myself and not mask, I am getting the help I need I don’t know if it’s the open letter, or surrendering to my circumstances that I can’t change and asking for help in ways that I don’t expect. I still have all the usual bugbears but I finally feel safe in my home despite having a new support worker starting we see that this is normally a huge deal for me but we are seeing that people are more open to me and willing to help, I live in the lap of luxury but having people willing to help is amazing and working with me, not against me, is going to do my health wonders. So I am grateful for the good people who work in this industry and can help change lives I went from independent to the family home through the mess that was the COVID lockdowns, medication misadventures, and seizures but now I am in this wonderful Sil house (supported independent accommo

  An open letter to support staff and I want to say that this is not all support staff and care givers but I have to express this frustration that isn't just mine alone it is at boiling point when we have asked for change and the only way to get it is to wear the labels with pride, dignity and to not give up the fight.  If your having a negative reaction to this letter I would ask you to open your mind and heart and question why, as this is my lived experence of having " well trained expert,"s caring for me in my own home.    Dear Support Staff I understand that this is your job and I am your responsibility, but can I tell you my side of the story and why in your words I don’t “engage,” It is on your terms because of a myriad of reasons that I can understand yet when I speak up, directly to staff I am considered the problem, I live to hear and yet I am needing to put up with clients you favor when I am needing help. You seem to have no situational awareness to how lou