Annie in wonderland

  An open letter to support staff and I want to say that this is not all support staff and care givers but I have to express this frustration that isn't just mine alone it is at boiling point when we have asked for change and the only way to get it is to wear the labels with pride, dignity and to not give up the fight.  If your having a negative reaction to this letter I would ask you to open your mind and heart and question why, as this is my lived experence of having " well trained expert,"s caring for me in my own home.    Dear Support Staff I understand that this is your job and I am your responsibility, but can I tell you my side of the story and why in your words I don’t “engage,” It is on your terms because of a myriad of reasons that I can understand yet when I speak up, directly to staff I am considered the problem, I live to hear and yet I am needing to put up with clients you favor when I am needing help. You seem to have no situational awareness to how lou

Support work is a complex dance of assistance, respect, and mutual understanding. However, within this intricate interplay, there lurks a troublesome specter: the "too posh to wash" attitude, which can manifest on both sides of the support equation. It's time to confront this issue head-on and pave the way for a more balanced and effective approach. Let's start with support workers. It's not uncommon for us to occasionally slip into the trap of feeling "too posh to wash." We may find ourselves hesitating at tasks we deem beneath us, forgetting that our primary role is to support, not to be served. But here's the wake-up call: if we're asking our clients to step up, we need to lead by example. Every task, no matter how mundane, contributes to the well-being of those we assist. However, if these tasks become overwhelming or too frequent, it might be time to consider alternative solutions, such as introducing a professional cleaning service into the

    So this has been on my mind for a while now and it’s the outright misinformation that is out there about disability and the NDIS, I am finding despite the chorus of content creators trying to educate people the legacy media seems to be louder and more persistent, but at the core lets be real the system is broken and we need to do better for everyone from support staff to Allied health professionals that write the reports to get us the funding we need at times that funding isn’t enough and then that is where the blame game starts around cost blowouts and people gaming the systems. So that brings me to the hairy end of the topic is the blame game and people thinking that participants have it easy( if you’re your decision maker it’s not) it can seem like a full-time job and this is where people get so wrong about who to blame as there is not an easy fix but there is several that are starting to emerge, the cost guide cap is a big one. Cracking down on dodgy providers and my person

  In the intricate dance of navigating life with invisible disabilities, there's a crucial partner often overlooked: support workers. These individuals play a vital role in providing assistance and ensuring that those with disabilities can navigate daily life with as much ease as possible. However, when support workers fail to understand the unique needs of individuals like myself, it can lead to frustration and challenges that could easily be avoided. Let's take a closer look at my own experience. Living with ADHD, epilepsy, minimal brain damage, Shojrin's syndrome, and peripheral neuropathy presents its fair share of obstacles. Yet, it's not just the disabilities themselves that pose challenges; it's the lack of understanding from those tasked with providing support. Despite my efforts to communicate my needs, some support workers have struggled to grasp the nuances of my disabilities. For instance, ADHD isn't just about being easily distracted; it encompasses

In the realm of home care and support services, the presence of illness can significantly alter the dynamics of caregiving. When a person falls ill within the confines of their home, the need for assistance and support amplifies, highlighting the indispensable role of support workers in such situations. In this blog post, we will explore the ways in which support workers can offer invaluable aid and comfort when illness strikes in a household. Provision of Physical Assistance: Support workers are adept at providing physical assistance to individuals who are sick. This can include helping with mobility issues, transferring the person from one place to another, or assisting with personal hygiene tasks such as bathing and dressing. Their training enables them to handle various medical equipment and aids effectively, ensuring the comfort and safety of the individual under their care. Administration of Medications: When someone falls ill at home, managing medications becomes crucial. Suppor

In the digital era, the internet serves as a double-edged sword when it comes to health information. On one hand, it offers unprecedented access to resources; on the other hand, it fosters a culture of self-diagnosis and misinformation, exacerbated by platforms like TikTok. This phenomenon not only poses significant risks to individuals' health but also perpetuates harmful stereotypes and misinformation, particularly within the disability community. In this blog post, we'll explore the intersection of internet self-diagnosis and TikTok health trends, and how these practices can be exceptionally offensive and dangerous to those with disabilities. The Dangers of Internet Self-Diagnosis: Self-diagnosis, fueled by the abundance of information available online, can lead individuals to misinterpret symptoms or inaccurately attribute them to certain conditions. This poses several risks: Misinformation and Inaccuracy: The internet is rife with inaccurate and unreliable health informat