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The Power of Lived Experience: Bridging the Gaps in Disability Care

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### The Power of Lived Experience: Bridging the Gaps in Disability Care In my recent video [insert link to the video], I touched on the importance of lived experience and the need for diverse voices in conversations about disability. But beyond that, there's a pressing need to address the realities of government care programs like the NDIS, the perspectives of providers, and how we can all work together to ensure that person-centered care truly supports not just the individual but their entire support network. **Understanding NDIS Cutbacks: A Reality Check** With recent cutbacks to the NDIS, it's more important than ever to be realistic about what to expect from a government-funded care program. The NDIS is designed to bridge the gap between the high costs of living with a disability and what individuals can afford, but it’s not a cure-all. It’s a valuable resource, but it’s one piece of a larger puzzle. As participants and families, we need to manage expectations and understan...

good and bad support ( look for a fan girl)

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Introduction Finding the right support worker goes beyond just matching qualifications. It's about connecting with someone who genuinely understands and cares about your needs—someone with a passion for helping others. In this post, I'll explore what makes support truly effective and why you should be on the lookout for the 'fan girl'—the ones who go to Comic-Con, Taylor Swift concerts, or obsess over their favorite shows. What Makes Support Good or Bad? Support isn't just about checking off tasks on a list; it's about how those tasks are executed. Good support workers combine technical skills with empathy, creating an environment where you feel truly understood and cared for. In contrast, bad support can leave you feeling like just another item on someone's to-do list, lacking the personal touch that makes you feel valued. This difference can significantly impact your overall well-being and progress. The Importance of Soft Skills While technical skills are ...

Recovery 2007

    This is going to be a hard one to write about and I am not sure if I should post it to the media blog or the main one. Still, I will post to both, and I have to admit I haven’t been able to finish the film but I have been watching the David Tennant movie Recovery and it’s on Tubi if you want to watch it legally. But you can also find it online as well. It is a well-done movie and it is a very accurate portrayal of a brain injury. It tells the story of    Allen head of a construction firm that suffers a traumatic brain injury and I have to say that its portrayal is accurate as it not only focuses on him as a brain injury survivor but also the family trying to accept that the person that they knew is gone and that there is a different person in place and the frustration of a person who “ present’s” as able-bodied but isn’t and has what we now know as a hidden disability as we don’t say invisible as this means that it may not be their, but hidden well it’s simply hi...

The why files a review of a hidden gem

    So I have be waiting to do this post for a while and it’s a review , of a really great content creator and I have to say this person is amazing as from what I understand the presenter used to be a TV producer pre pandemic, and I see that the production values are amazing.   He also has a    side kick called heckle fish, and this is at times a necessary tension breaker, it’s a channel and pod cast called the why files and it’s amazing he covers a lot of topics, including conspiracy theories, “sudo science” and other Mythological content that people might have proven but been dismissed by legal media using there very old play book that was exposed in manufacturing consent. But he really does his homework and his big difference between Russel brand and other debunking channels is there is no overarching political motive or past that people can use against him. He also takes a very balanced approach in what he sorry to say debunks using science and a lot of home...