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Showing posts from February 6, 2022

Disability and the internet

 So I realized I was going so deep into scrolling into my phone at night it was starting to affect my sleep hygiene and this hasn't been great at the best of times.  I didn't even realize that it had a name. It is called Revenge Bedtime Procrastination.  Revenge Bedtime Procrastination: Definition & Psychology | Sleep Foundation For me, it started when I had to move back to the family home and this came with a lot of issues that due to my health and disabilities we are still working through.  However talking with my care team made me realize that people with disabilities that don't work and are on benefits often have very little enjoyment and movies and the internet are the way that they interact with the world, this was even pre-pandemic.  So for me, I have charted my failure of getting back into a good routine, as I did want to do a complete digital detox but I live in an area where Covid is still very much a risk, and being a blogger doesn't help however I have s

My story

  What it is like living with a neurological disorder. So this is going to be a bit of a more personal post as I live with several neurological disorders, as well as physical illnesses that interact in a weird variety of ways.   So we need to start with the basics, this explains very well what is a neurological disorder. Neurological disorder - Wikipedia   In later posts, I will go into treatments in a very broad sense and how they work and their side effects and not only physical side effects but social and emotional.  W hen someone is diagnosed with a neurological disorder their whole lives change and this includes their family and friends. In my case (and some of it is well deserved) thinking that having a large amount of control over my day is a good thing, if I want to do something different, I have to ask, and this and other topics have created a lot of issues for me.   I live in a semi-constant state of wondering who I have pissed off due to their reactions around me. So th

When giving up is the best thing you can do

   So many people have said that the best thing that you can do for yourself is to never give up, but in the context of disability sometimes it is the best thing you can do, for your physical, mental, and emotional health.  Some really obvious things are:  Giving up trying to go at the same pace as others  Trying to achieve the same goals as others (this might be true for some but not others)  Trying to please others all the time - this might lead to others being angry because you are no longer a people pleaser and taking a risk. (I will do a longer post on this one as I am seeing so many people for the sake of having friends and support not understand the difference between friendship and being used)   Pushing yourself to be normal and being fatigued because of it. - This just doesn't work and can make your disability or illness so much worse  Seeing that work is the point of life and feeling guilty if you can't work - yet you still need a purpose in life, so that could be kee