Annie in wonderland

  This is something that I need to write for accountability, so I have due to some personal reasons and some with changes in care staff have got out of a routine and have let bad habits creep drinking excess caffeine (though I have discovered that name-brand coke soft drink does give me some level of pain relief, from nerve pain) These things being. Binge eating at night. Not keeping up with housework Not having a good solid routine Not exercising enough to be able to keep excess weight off I am not talking to support workers when things are getting to me Not keeping up with my specialist appointments Not keeping up with friends Being over-tired due to having too much screen time Not keeping up with my physiotherapy Not understanding the role of support workers in my life Not keeping up with the housework I am responsible for and accountable for – washing and ironing clothes and keeping an accurate shopping list, Not keeping to a reasonable budget and allowing m

 This is going to be a short and sweet post and a post that I wanted to do and it is because people are starting to see support workers as not something to be ashamed of but they starting to be seen as a normal thing that people with a disability that have access to the NDIS might choose to use there are several forms of support and this is where things get complex. One is housing so this is mainly Sil housing ( supported independent living)  that has been established by a support provider and this depends on the person's needs and funding ratios, this is where ratios of support come in so this could be that you are either a 1:3 so that being one support worker to three clients, or a 1:2 or needing around the clock care being a 1:1 so this being one person to one support worker but in a housing situation its very rare.  I don’t like the term parents as we are the main character in our lives and not just a participant this is why I use client I know in some international governmen

 This seems to be a topic I constantly come back to as it is the backbone of the NDIS, and I am updating the blog as I learn more about support and I am not learning about it from a book or other “academic” sources. I am living it. So I am judging it by my own lived experience and this seems to be a good thing due to the fact that there is a definite difference between good and bad support and to go even further good and bad support workers. To put it in perspective basically those who understand the assignment at a deep level and for those who it is just a job, I see that some people have a unique combination of both of these, being that they understand the job is more than taking people out for coffees and are able to bog in and get the hard yards done so getting the house work done, getting a person into a good routine, keeping them in touch with family, friends and helping them to navigate these relationships with others and in a respectful ways. We also see that the general po

  So, I debated long and hard this post about writing due to the people involved and we are still dealing with the fallout, but I will do my best to censor myself and not throw myself under the bus. The first thing I need to say is that I am no angel and get tired of advocating for myself.   In the same organization. Most people who have disabilities that are in the higher functioning range are sick of hearing it, and sick of telling support workers what they need, or even being dictated to by agencies, But what happens when a support worker abuses their power and this happens more than you would think to the point that there is a term for it due to the prevalence, Its called being care resistant and it means that everyone when the client finally accepts care they have to do extra work to gain the clients trust due to the fact that they can’t trust the very people who are supposed to care for them. [i] I have on YouTube and on this blog written about being abused by support worke