Annie in wonderland

  In the intricate dance of navigating life with invisible disabilities, there's a crucial partner often overlooked: support workers. These individuals play a vital role in providing assistance and ensuring that those with disabilities can navigate daily life with as much ease as possible. However, when support workers fail to understand the unique needs of individuals like myself, it can lead to frustration and challenges that could easily be avoided. Let's take a closer look at my own experience. Living with ADHD, epilepsy, minimal brain damage, Shojrin's syndrome, and peripheral neuropathy presents its fair share of obstacles. Yet, it's not just the disabilities themselves that pose challenges; it's the lack of understanding from those tasked with providing support. Despite my efforts to communicate my needs, some support workers have struggled to grasp the nuances of my disabilities. For instance, ADHD isn't just about being easily distracted; it encompasses

 This is the first thing we need to know is what is an ordinary life as we have content creators and YouTubers as a legitimate career option these days, we are also seeing that lives are mostly lived online and people who choose to on their weekends go hiking, canoeing or fishing are called extreme, I know that there is such a thing as extreme hiking where you go long distances with very little prep and the city version is to go urban exploring ( generally at night or in abandoned palaces to find interesting things. In Australia we don’t have much scope for extreme hiking due to the heat and cold but long distance is definitely a thing, but we then get to what is an ordinary life when it comes to disability and this is straight from the NDIS website, about life more ordinary,  and how they use it to decide support’s and this then goes into we need to know what is a disability. “An ordinary life is a life where you have the same opportunities as people without a disability. An ordin

  So, I debated long and hard this post about writing due to the people involved and we are still dealing with the fallout, but I will do my best to censor myself and not throw myself under the bus. The first thing I need to say is that I am no angel and get tired of advocating for myself.   In the same organization. Most people who have disabilities that are in the higher functioning range are sick of hearing it, and sick of telling support workers what they need, or even being dictated to by agencies, But what happens when a support worker abuses their power and this happens more than you would think to the point that there is a term for it due to the prevalence, Its called being care resistant and it means that everyone when the client finally accepts care they have to do extra work to gain the clients trust due to the fact that they can’t trust the very people who are supposed to care for them. [i] I have on YouTube and on this blog written about being abused by support worke

  https://open.spotify.com/episode/2OFfna9AEpkqVcYeJNcmLY?si=70LdqFLBTlmP5NIbRogg8g This is a great episode and I have listened to it several times I need to put it out there that this host Alexis doesn’t mince her words, and I mean doesn’t mince her words uses what could be considered “offensive words to get her point across, but it’s used to prove a point and not to get or gain clickbait. This episode is on the low dopamine trend, and I see that this is a trend that started in the ADHD, community and the “content creation” community took it and ran with it and is actively spreading miss information about dopamine, this podcaster has a background in Neuroscience (I am not sure of her qualifications but will find out for you). This is part of a wider trend that I am sick of, and I am sure that many more in the disability community and cohort are sick of as well since it’s something that we created for ourselves, and it’s then been taken out of context for views. Also spreading

  So this is for all of you who requested some more video content and if you like this I will commit to doing more videos. Let me know what you think, this is me talking about Chain of Gold by Cassandra Clare, it's the new book in the Shadowhunters world.  I am looking to post to the blog twice a week and film once a week, but it depends on what my readers and viewers like so, guys can you please leave a comment or  share the videos.  https://youtu.be/2VSR4J-uLWA

So I have just finished this book and it is a great read however I am a little bit confused about what is happening in it as I have followed this series most of the way through. It has got me through some very dark times in my life. Because I live with several chronic illnesses and haven’t had what most people would consider a normal life.   (this being for a woman a job marriage and rising a family). I live with eleplisy, high functioning ADHD, and a TBI as well as shojrins syndrome that severely limits my “functional capacity,” this is complex at times because I don’t “look,” disabled and that I need care that others don’t see as care and it can be expensive to get the medical care I need and I am on the pension.     I have the luxury of being on the NDIS though, it is complex however to navigate the system and on my good days I would love to have a “normal,” life this is where this blog comes in talking about disability and how we see the world. I see books not as a Young ad

If you give a mouse a cookie. (1) If you give a mouse a cookie | Read Aloud | Storytime - YouTube   This on the surface is a great kid’s book, however, it shows, what could be called the slippery slope fallacy. So, it is about to do we have free will.  Something that is up for massive levels of debate and people has dedicated their whole lives to trying to solve this question there are many thoughts on this and many different schools of thought. It also goes into in a very small way moral responsibility to others.  It is about a mouse that is freely given a cookie, yet there are more and more requests. On the person who freely gave the cookie to the mouse, given that the cookie was given willingly I do ask the question about does the person that is giving the mouse a cookie understand the consequences of his actions. This goes into the Law of unintended consequences, this law being that you can’t always see the consequences of your actions and that at times these actions you might