Annie in wonderland

 So this is going to be a very basic post and it’s one that I discovered needed doing as people are not understanding the NDIS and disability Jargon. I do admit it’s a lot to get used to and to be aware that you have to learn a new language essentially and if English isn’t your first language it gets even harder.  I have done a video on this that is embedded in the blog post but, ADLs are the foundations of life, they are Activities of Daily living, the really basic stuff, being able to move around without a mobility aid, being able to dress yourself, being able to eat, grooming and toileting and showering. There is a crossover between these and life skills and some could be considered both like hygiene in the home such as cleaning, changing bed sheets being able to vacuum or mop a floor, and cooking goes with being able to eat, but they are what make up the foundations of life and you can see how we say that it’s where you are first assessed on with applying for the NDIS  as the f

So as I write this I am  upstairs in the new unit and it’s something that I didn’t feel safe to do in my other unit unless there was a support worker, in this house there is a support worker most of the time and I have much better access to support and they are much better suited to my needs and my team from the other house, has started to move with me but it’s a really difficult topic to talk about due to the fact that so many support workers come into the job with great intentions, but when the reality hits of people with what is called behaviour’s of concern we see that people need to be very aware of this and that the behaviour’s can be extreme to the point that no organization will take them on or they need to employ a private worker, but we see that this is a massive issue at the moment.  Due to people not understanding “hidden disabilities” these being Autism, brain injuries, ADHD, and mental health issues and you physical health can effect your mental health, so if you don’

This was unbelievable to me that I had to have these conversations around what is a disability and a chronic illness, what made this situation so unbelievable was the fact that the person involved was a younger support worker and it shows me that we need to have a serious push for education around disability and what disability support is and that it does involve a large amount of care.   I am finding it harder and harder to deal with the lack of general education of the support workers and their unwillingness to see that because I am high functioning doesn’t mean that I am not disabled, and we see that people need to be aware of this and we see that many disability advocates are working both online and offline that are willing to come and work with people to learn about “hidden disabilities” so these being disabilities that aren’t obvious to people at first glance and we see that people are becoming more aware of this and this is great but there isn’t a great deal of informal suppor

  What is passive support and how does it create risks in the NDIS, so passive support is as complex as active support but it is more of a hands-off approach so it is person-centered in a way that there is a minimum direction in what people are being given when they are paying for the support it often happens in people who are higher functioning and are capable of making their own decisions but need support in a practical sense.   So this is practical support, in activities of daily living and we see that if a support worker makes assumptions, we see that this is where the risk of passive support comes in and there are times when it is very appropriate in a person with a disability. However, when a support worker is too hands-off we can see it leading to situations if the support worker isn’t fully aware of their client's disabilities it can lead to situations that can lead to the potential for harm so this is where it needs to be balanced with support and this is a very hard b