Annie in wonderland

This is something that we need to talk about, and I see that we need to be aware of it, that support workers are human and need good backup support from their agency. I saw a couple of incidents that we need to be reminded of that there are some great agencies out there and that we need to remember that the support workers do have, lives outside of work, many clients, and having to be able to work with a large group of people can be massive. We also see that this is something that Large multi-office organizations seem to forget they are focused on the numbers, and we don’t want to see that we want to see person-centered care from a lot of people, and we see that this is something that people need and want and what is person-centered care? It is something that we need to be aware of it is where the person is put at the front of their care and people need to be aware that it’s driven by the person with a disability, not the care organizations and we see that this could be a massive iss

This was unbelievable to me that I had to have these conversations around what is a disability and a chronic illness, what made this situation so unbelievable was the fact that the person involved was a younger support worker and it shows me that we need to have a serious push for education around disability and what disability support is and that it does involve a large amount of care.   I am finding it harder and harder to deal with the lack of general education of the support workers and their unwillingness to see that because I am high functioning doesn’t mean that I am not disabled, and we see that people need to be aware of this and we see that many disability advocates are working both online and offline that are willing to come and work with people to learn about “hidden disabilities” so these being disabilities that aren’t obvious to people at first glance and we see that people are becoming more aware of this and this is great but there isn’t a great deal of informal suppor