Annie in wonderland

    I saw this on Facebook overnight as I suffer from what is [i] called Peripheral neuropathy and we can’t figure out where it came from and how to stop it, but it is nerve damage and it gets worse at night because there isn’t a lot I can do to stop it, I have tried medications but I am sad to say their side effects where worse than the pain itself. I manage it but some really basic means, a good diet, exercise, and at times forcing myself out of the house, to do things that I don’t want to do, basically being an adult and not over-relying on support workers, but it’s a really common question, that we need to start answering. The question   What can I do with my NDIS funding besides getting a support worker we are all starting to understand what a support worker can and can’t do the options for employing one and the housing options and providers are starting to move to be compliant with what the commission has said about, Housing, Food and providing the basics of life, and the us

    Let’s call this Day two for manifestation and I am working on believing in it, but I did forget for a couple of days. But as I have said before at the end of the day it’s a meditation and it helps me to relax, and to rest as I haven’t been the best version of myself. But this is helping me to be a better person and to not avoid difficult things, like getting organized I am seeing that there are some fundamental truths in my life that I won’t go into, but I have discovered that I have an avoidant personality, so I am looking at this and working with a mental health professional. I also seem to get paranoid and regularly implode my life and this isn’t great to do but I am starting to look after my physical and mental health such as walking and getting my ds appointments under control. I am trying to manifest a life where I have better relations in my personal life and where I am not avoiding my feelings, by really working on it to be able to get my life back on track, and this is

    So, I am re starting an experiment that I have been doing for a long time and is manifesting. I have always thought of it as mumbo jumbo but I see that at the end of the day, it’s a meditation and can’t do much harm so I am going to document as a bit of accountability to what I am doing what I see happening, at the moment I can’t visualize or even pin down what I want in my life as I am afraid to ask the universe what I want and I have also been raised in the Anglican church and as a young adult I as a Pentecostal Christian until I heard some very uneducated comments come from some pastors and I was working. But this is day one and last night I did the mediation and it’s saying to do it for 30 to 60 days, so let's try it. At this point in time I am starting to get an idea that I want to have more friends and to be more social, to be reasonably well, to heal some rifts in my personal life, and to attract a significant other into my life and to get back into life and I know tha

    I have realised I live with a certain low level of constant frustration that is starting to wear me down and it’s entirely my own fault. It to me seems to be a combination of major things coming into my life and some are my fault, but others aren’t, and they are something that I find incredibly wearing and I think that this is not talked about in society. So, I have been very honest and open about living with Chronic pain and the limitations it puts on me as well, but we also do see that there is something else that leads to frustration in people with disabilities lives and this is something weird that we really do need to discuss, it’s a combination of being disconnected from the rest of society. I know that the Royal commission will help with this, but we are seeing a definite normalization of identity and I really do respect that, but I am not seeing as much as a lean towards disability acceptance and we are seeing that people still think it’s ok to talk over us and not to amp

 I am studying at the moment but saw a post from a disabled creator on this platform talking about internalised ableism and I get that is a thing, as I know that I have it most of the time but where do we start to draw the line and say that we aren’t responsible for educating everyone we meet about our disability and that there is sometimes for hidden or physical disabilities a time to meet society’s expectations, for what we are about to do. We can’t expect the world to change for us when we aren’t willing to put in the work  and I know that this opinion will cop a lot of backlash but we need to be accountable to the best of our abilities and acknowledge how far we have come and we need to be thank full for what we have as we have more than the people who came before us and fought for us to have equal access and are still fighting for equal access, but what I don’t agree with is equity as this removes all the learning opposites and provides a space for learnt dependence and this can

This is a post that I wrote in my head last night as I am in the middle of potentially changing supported living houses but staying with the same company and I can’t remember something heartbreaking. I can’t remember the last time someone physically said they love me, or I am doing good or congratulated me for doing something well, as my family often has concern for me, and I don’t see that my actions have consequences for other people. But please don’t feel sorry for me first and that my family and friends do they do it by there actions and this has lead me to some really interesting feelings of knowing I am an adult but at the same time feeling really alone in the world as I see my friendship group that are “ able bodied” go to work and have the arguments about the kids and I really feel like I have missed that boat on having a stable romantic relationship due to me not being able to really trust anyone and that actually includes myself and my support team in the house as they have