Posts

Showing posts from February 18, 2024

Title: Advocating for Understanding: The Importance of Support Workers Knowing My Needs

  In the intricate dance of navigating life with invisible disabilities, there's a crucial partner often overlooked: support workers. These individuals play a vital role in providing assistance and ensuring that those with disabilities can navigate daily life with as much ease as possible. However, when support workers fail to understand the unique needs of individuals like myself, it can lead to frustration and challenges that could easily be avoided. Let's take a closer look at my own experience. Living with ADHD, epilepsy, minimal brain damage, Shojrin's syndrome, and peripheral neuropathy presents its fair share of obstacles. Yet, it's not just the disabilities themselves that pose challenges; it's the lack of understanding from those tasked with providing support. Despite my efforts to communicate my needs, some support workers have struggled to grasp the nuances of my disabilities. For instance, ADHD isn't just about being easily distracted; it encompasses...

Navigating NDIS Compliance, ADHD Masking, and the Desire to Manifest Change: A Complex Journey

  In the intricate dance of navigating the National Disability Insurance Scheme (NDIS), the desire to manifest someone out of your life can become entangled with the necessity of masking ADHD symptoms, particularly in the context of housing compliance issues. For women and girls with ADHD, the concept of masking adds another layer of complexity to an already challenging scenario. Let's set the stage: you find yourself in a situation where the housing manager, tasked with ensuring compliance with NDIS regulations, is failing to meet their obligations. Ratios are being breached, essential support is lacking, and your legitimate concerns are falling on deaf ears. Yet, the mere act of speaking up is met with accusations of being difficult or a troublemaker. Here lies the crux of the matter: ADHD masking. It's not just about hiding symptoms to conform to societal expectations; it's about survival in a world that often fails to understand or accommodate neurodivergent individuals...

person centered care in reality

Image
Introduction: In the realm of caring for individuals with disabilities, striking a balance between the medical model and person-centered care is crucial. This holistic approach recognizes the multifaceted nature of human experience and aims to address the individual's unique needs while navigating behaviors of concern and challenging behaviors. In this blog post, we'll explore how the holistic model integrates both perspectives and offers comprehensive support for individuals with disabilities. Understanding the Medical Model vs. Person-Centered Care: The Medical Model: The medical model traditionally focuses on diagnosing and treating medical conditions or impairments. It views disability as a deficiency or deviation from the norm, often emphasizing medical interventions and symptom management. While this approach is valuable for addressing physical health concerns, it may overlook the broader psychosocial aspects of disability and the individual's preferences and autonomy...

From Shocked Pikachu Faces to Fair Pay: A Call for Justice in Disability Representation

  Alright, folks, let's dive into a topic that's long overdue for some real talk: paying disabled content creators fairly. Yep, you heard me right. Disabled creators are out here grinding, just like everyone else, and shockingly enough, we have bills to pay too. Now, let's address the elephant in the room: that classic "shocked Pikachu face" people make when they find out disabled creators expect fair compensation for their work. Picture it: you tell someone you're disabled and creating content for a living, and suddenly they look like Pikachu just got hit by a bolt of lightning. Seriously, it's not a cute look. It's not endearing. It's just plain insulting. But wait, here comes the next blow: "But your content is so niche." Ah, yes, the old "niche" argument. Funny how suddenly our content is "niche" when it comes time to talk about fair compensation, but it's "inspiring" enough for everyone to share on t...