Planning Meetings, Support, and Advocacy: The Reality of Being Heard
Hey all, I had a planning meeting today with my Support Coordinator (SC) and some people in my personal life. It went well, aside from a moment when they asked about how much toilet paper I had since they were doing a Costco run. I'm considering getting my own membership, but I’m grateful for the support they offer. Many people with disabilities don’t have the benefit of informal supports—those who back you up, help you destress, and give you the option to either collaborate or have alone time. Paid support is important, but we must remember that it's a job for them at the end of the day. They're paid to be kind and to care. I feel incredibly blessed to have supportive people in my life. It's a big deal—having a child with a disability, who inevitably becomes an adult with a disability. While some may have low support needs, it’s rare for someone to simply grow out of their disability. It can happen, but it’s not common. Having a disabled child, alongside other sibling