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Showing posts with the label Support Coordinator

Planning Meetings, Support, and Advocacy: The Reality of Being Heard

Hey all,  I had a planning meeting today with my Support Coordinator (SC) and some people in my personal life. It went well, aside from a moment when they asked about how much toilet paper I had since they were doing a Costco run. I'm considering getting my own membership, but I’m grateful for the support they offer. Many people with disabilities don’t have the benefit of informal supports—those who back you up, help you destress, and give you the option to either collaborate or have alone time. Paid support is important, but we must remember that it's a job for them at the end of the day. They're paid to be kind and to care. I feel incredibly blessed to have supportive people in my life. It's a big deal—having a child with a disability, who inevitably becomes an adult with a disability. While some may have low support needs, it’s rare for someone to simply grow out of their disability. It can happen, but it’s not common. Having a disabled child, alongside other sibling

why we need a deficit based funding system

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Why the NDIS Needs a Deficits-Based Funding System The National Disability Insurance Scheme (NDIS) was designed to support people with disabilities in accessing the services they need to live more independent lives. However, there’s a growing concern that the current funding structure, which leans heavily on skills-based assessments, isn’t providing the most effective support. What we truly need is a deficits-based funding system—where funding is tied to a person’s limitations, with support focused on building the necessary skills to improve quality of life. The Flaws of a Skills-Based Funding System At first glance, a skills-based system may seem logical—funding is allocated based on what people can already do. However, this approach overlooks the reality that many participants need support precisely because of what they cannot do without assistance. It assumes that everyone has a certain baseline of ability, and the funding builds from there, which is simply not the case for many pe