Annie in wonderland

https://open.spotify.com/show/2dLRtagYg0ZQqizcjvvrgY?si=fa2a6dffbeca4c46   When people talk about the NDIS, the conversation often begins with change. A new announcement, a new policy, a new review, or a new headline appears and suddenly thousands of people are trying to work out what it means for them, their families, their supports, and their future. But the reality of the NDIS is much bigger than any single announcement. Behind every change are real people trying to navigate a system that affects their everyday lives. There are participants trying to understand what their options are. There are families supporting loved ones through uncertainty. There are support workers helping people achieve their goals. There are support coordinators working every day to help people understand not just what is happening, but why it is happening. This is where conversations become important. Because knowing that something has changed is very different from understanding the impact of that chan...

This is a post I've been delaying, but here are my thoughts on the NDIS changes. My thoughts are many and varied, but the reforms are a very mixed bag. People need to understand that the reforms came through for a reason, and that reason is the misuse of the system and instances of fraud. What's been amusing to me is seeing the “advocates” coming out of the woodwork—people I’ve never heard of—claiming to be allies with us. There are some amazing advocates out there, both on the internet and worldwide, but some of these newcomers are blogging on LinkedIn about “foundational support.” I admit, I misunderstood at first, but they were talking about non-NDIS support. The big question is: where is the money coming from if it's for people who don’t qualify for the NDIS? Is it going to come from the state or federal government? The NDIS was supposed to level the playing field, and that involves having barriers to entry. We need to differentiate between a health condition and a disa...

  Alright, folks, let's dive into a topic that's long overdue for some real talk: paying disabled content creators fairly. Yep, you heard me right. Disabled creators are out here grinding, just like everyone else, and shockingly enough, we have bills to pay too. Now, let's address the elephant in the room: that classic "shocked Pikachu face" people make when they find out disabled creators expect fair compensation for their work. Picture it: you tell someone you're disabled and creating content for a living, and suddenly they look like Pikachu just got hit by a bolt of lightning. Seriously, it's not a cute look. It's not endearing. It's just plain insulting. But wait, here comes the next blow: "But your content is so niche." Ah, yes, the old "niche" argument. Funny how suddenly our content is "niche" when it comes time to talk about fair compensation, but it's "inspiring" enough for everyone to share on t...

   I was asked today about something that I had put some thought into and I am now going to go into my thoughts a lot more, due to the fact that it’s something that really annoys me when I hear it. Its calling someone Neurotypical and forcing langue on them.   I am all for softer langue but to put it into context this person was self diagnosed and had not   sought out a diagnosis and this seems to be playing into   tropes and this is the danger of self diagnosis due to the fact that some people will start to treat the “ symptoms” but make it much worse due to the fact that people need a proper diagnosis be able to   move forward and for some folks with neurodivergent   brains that have a “proper diagnosis”   often mask this is when   a person who is ADHD or Autistic will hide their personality or stims, but if you get to know the person we will see that they will start to unmask.   So this would be wearing headphones due to   nois...

This is going to be a bit of a different post due to the controversial nature of it, and this is something that we need to be aware of when people are talking about “inclusion, equality, and diversity,” something that has been hijacked and politized to the core in universities, at its core it’s about including everyone in the conversation. However, I see that there is a group of people who are often left out of the conversation until it becomes critical because someone has been harmed and people start to realize that there is very little education or training around disability in schools and higher education facilities, except that they do have some forms of what they call disability accommodations, but one look on Reddit we see that many professors don’t accept them or don’t even realize they exist. This is because they have been abused by people who don’t need them, so what is it that I am rambling on about, well it’s disability erasure and mainstreaming of disability. This is a good...

  The basics are that a change of circumstances is when a person is needing more support that is available within the scope of the NDIS but is unable to fund it within their current funding model and this is where we see some common examples of this could be a disability that changes your mobility or changes your level of function from day to day. Or you are at risk of social exclusion so needing extra community access, or even your housing facility has covid so they need extra support as you can’t be left alone, and we see that these are all reasons for change. As well as unexpected events such as an illness or needing to move homes so from independent living to a Supported living facility, or from a private rental to a specialist disability accommodation housing. These are all situations where if we didn’t have funding in a plan you can apply for the change of circumstances within this situation, and we see that this is not something that we need to use all the time. The fundin...

  I have started seeking professional help for my internet addiction and I am going to get help I have asked for help from my support team in the house that I live in and this means having a very controversial thing in a place called a restrictive practice and we see that it needs to be in place for me to be able to function and to be an active member of the house and to be aware that I am socially isolated but I at the same time am surrounded by people and we see that this is an issue that needs to be addressed that we are all connected but not at the same time. We are connected to devices and not each other so I am going to be very intentional about seeking time off the internet and having screen-free time and this means going back to the drawing board.   this means looking for work so I am going to look at what is practical in my area as well as I am hamstrung because I   don’t drive so remote work is what works for me but then I am a people person so I think a balan...