PSA Stop self diagnosing your Disability it's actually kind of offensive.
I was asked today about something that I had put some
thought into and I am now going to go into my thoughts a lot more, due to the
fact that it’s something that really annoys me when I hear it. Its calling
someone Neurotypical and forcing langue on them.
I am all for softer langue but to put it into context this
person was self diagnosed and had not sought out a diagnosis and this seems to be playing
into tropes and this is the danger of
self diagnosis due to the fact that some people will start to treat the “ symptoms”
but make it much worse due to the fact that people need a proper diagnosis be
able to move forward and for some folks
with neurodivergent brains that have a “proper
diagnosis” often mask this is when a person who is ADHD or Autistic will hide their
personality or stims, but if you get to know the person we will see that they
will start to unmask. So this would be wearing
headphones due to noise overload, or
sensory issues wearing the same thing. It would be a ADHD person talking about
their current hyper fixation and seeking
accessibility’s this might be flexibility in work.
It's also dangerous to self-diagnosis as it leads to not only stereotypical behaviour, but it can
lead to harm in the wider community, as this then promotes tropes that might
not be accurate or even offensive. I am
also finding it “ trendy” to be diagnosed and there is also the possibility of
people getting diagnosed to be able to access
care, but they are finding that a diagnosis doesn’t equal automatic access
to care programs.
But it goes into
wider disability discussion around disability etiquette and the first rule of being in the community is to
not ‘gate keep” every one is welcome, but there is a few unwritten rules being
that
·
Respect the lived experience of others
·
Get a diagnosis so you can be treated and have
the accommodations that are appropriate to you. In AUS this can be bulk billed and you can go
though your local outpatient mental health facility so money isn’t an issue.
·
Don’t use your disability as an excuse to have
bad behaviour.
·
Don’t gate keep or force langue on to people who
don’t understand what it means
·
Don’t make it apart of your whole personality
its only one facet of your life.
·
Educate yourself on your condition and this
includes talking to others with the same condition but also joining online
support groups.
·
Realizing that you need to be able to help yourself
and if you do have care to know it has limits.
·
Understanding that not everyone is going to
accept that you have a disability as ADHD can be a disability but it’s also very
treatable and by using technology and medication this is where it’s so
important to have a proper diagnosis and to go though the appropriate treatment
pathways to be able to seek out what treatment you need. ( People who say well
that is just me don’t understand how getting treatment can improve quality of
life in many ways)
It’s great that we are seeing more people
being open about their struggles but when it becomes a massive part of your
personality and how you interact with the world you need to be able to accept
that it’s 1 in 5 that has a disability but
there is often a large part of the
community that even in open communities that have care programs, it may not be
safe for them to disclose that you have a disability as people are still losing
jobs and business options due to this, and being so open about it in a work
place is a flag that someone may be faking it and yes masking is a thing but
with the rise of the internet we need to have some media discretion and get a
medical diagnosis to be able to access care and treatment and the disability
does affect people in very different ways and this is where the stereotypical behaviour comes into play in
that people seem to want to play to the stereotypes and this creates harm in
people believing these tropes.
We now have the technology to brain map and
to have targeted treatment in ADHD and you can see the underdevelopment of the areas of the brain,
and over stimulation of the others as
well. It is also targeted for treatment and improvement in thinking and flexibility.
While there is a lot of understanding and
acceptance of this community there is also like in any community diversity but
one thing we need to accept is getting a formal diagnosis to be able to prevent
foreseeable harm to not only yourself and to others as well, as harm is something
that your disability can cause to others weather that be family friends or support
workers.
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