Annie in wonderland

 In deciding that I wanted to go back to some level of paid work, I am working on some basic skills. As I have been out of the workforce for some time, I have done some casual work but it’s not enough to have on my resume and it does show me what I hadn’t realized about working when you have a disability and a chronic illness and I now know why there is so many of us in the online world as content creators. It’s that we can work at our own pace. One thing I hadn’t considered is, emotional intelligence at work as I am completely retaining as I can’t stand for long periods so I need an industry where I am not standing all the time. Sleeping through the night is still a challenge for me as  I have seizure-related events called Parasomnias and I get up to eat or drink throughout the night, leading to poor quality sleep, so it's again before I even put a resume together I am looking at the skills I need to be work ready. So that to me is an ongoing list of emotional intellige...

  An open letter to support staff and I want to say that this is not all support staff and care givers but I have to express this frustration that isn't just mine alone it is at boiling point when we have asked for change and the only way to get it is to wear the labels with pride, dignity and to not give up the fight.  If your having a negative reaction to this letter I would ask you to open your mind and heart and question why, as this is my lived experence of having " well trained expert,"s caring for me in my own home.    Dear Support Staff I understand that this is your job and I am your responsibility, but can I tell you my side of the story and why in your words I don’t “engage,” It is on your terms because of a myriad of reasons that I can understand yet when I speak up, directly to staff I am considered the problem, I live to hear and yet I am needing to put up with clients you favor when I am needing help. You seem to have no situational awareness to ho...