Annie in wonderland

    I am writing this on a Saturday, and I am getting used to the weather and changing my routine Given that I can’t drive I am reliant on others to drive me or to have workarounds such as public transport or taxis.   I am also grateful for people who will despite working long days listen to me or take me home or go walking with me as I make the effort to be a better person as I haven’t for a long time been my best self. I have been trying recently to defend my connection with others despite this being a challenge for me to connect with others. I do have a struggle with what is appropriate and what is an excuse vs what is a reason for me to need support and it’s a challenge that I didn’t realize until I started doing some background reading for this post to be aware that it’s a challenge for people, who also live with disabilities and being higher functioning to be able to accept the help.   It reduces the burden on the family as well, it’s just a question of how to use the support y

  So, I must just get this out of my system, and I am seeing why I am not manifesting what I want in my life. The first one is I am not putting in the work, so the meditation to find the blockages in my life as are becoming very apparent to me, and some things I can’t control but others I can, and I am willing to tell you why. In my house (I live in what is called a SIL house, this is short for Supported Independent Living) it’s a type of housing for people with disability but is more for people with mental health needs or like myself psychosocial disabilities. So, people who would otherwise fall between the cracks in support, but we have one support worker that through the virtue of her relationship’s in the company. She is essentially allowed to get away with a lot more and simply feels the need to be the adult in the room and “direct traffic, this is annoying the other support workers as they have had to pick up the slack due to them not being able to speak up to management due to

This is something that we need to talk about, and I see that we need to be aware of it, that support workers are human and need good backup support from their agency. I saw a couple of incidents that we need to be reminded of that there are some great agencies out there and that we need to remember that the support workers do have, lives outside of work, many clients, and having to be able to work with a large group of people can be massive. We also see that this is something that Large multi-office organizations seem to forget they are focused on the numbers, and we don’t want to see that we want to see person-centered care from a lot of people, and we see that this is something that people need and want and what is person-centered care? It is something that we need to be aware of it is where the person is put at the front of their care and people need to be aware that it’s driven by the person with a disability, not the care organizations and we see that this could be a massive iss

So this video  and this blog post came on the back of what I outlined in my post about what a support worker can and can’t do for you and we see that it’s view count is still rising, and I think that we now need to step back and have a little chat about the reality of living with a disability and  doing some myth busting around it but I need people to be aware of a couple of things before we dive in these being that these are only my lived experiences and not universal experiences but we see that people do have to deal with this all the time and it might not be as a result of your disability but as a result of poor support and care and this we see can lead to a massive amount of harm and we see that this level of harm can lead to very poor physical and mental health outcomes and this is the first thing that I would like people to know that living with a disability isn’t “cute” or funny it is downright hard work and that is the second thing I would like people to know that I would love