**Hot Takes: The Problem with Support Workers on TikTok

There’s a concerning trend on TikTok where some support workers feel it's acceptable to publicly criticize higher-functioning clients. When clients push back or express concerns, they are often labeled as entitled. While entitlement can sometimes be an issue, such public criticisms devalue the profession.

Burnout is very real for support workers, but so is the concept of masking for clients. Masking involves using neurotypical social skills, which can be exhausting and harmful when clients are not believed upon de-masking. This lack of belief can be exacerbated by support workers online who mistakenly see themselves as advocates without understanding that true allyship involves amplifying the voices of those they support.

It’s important to recognize that the world has become more sensitive, and criticism should be taken constructively. However, some support workers with messiah complexes glamorize the industry and create a divisive environment by publicly criticizing others who may not perform certain tasks. This detracts from addressing real issues within the industry.

I have personally stopped following certain online personalities due to their unprofessional attitudes and have discussed these concerns with friends in the industry. There is a particular content creator on TikTok who aims to become an influencer, seeking paid vacations without understanding the potential ethical issues involved. Many influencers, especially those on platforms like Instagram, often offer "professional services" that may not be immediately apparent to the older generation, who might mistakenly see it as an easy job. It's essential to recognize that these roles can sometimes involve being an escort, which should not be devalued but acknowledged for what it is.

This highlights the difference between content creators, who often promote businesses and maintain their day jobs, and influencers. The digital footprint is significant, and we need to take back control by exposing both unethical providers and support workers who engage in inappropriate behavior. This includes favoritism or gift-giving, which may not always be appropriate. While accepting small presents on special occasions is common, professional boundaries must be maintained.

Onboarding for both clients and support staff is crucial. Both parties need to see the job for what it is—a professional relationship aimed at facilitating better quality of life and social connections for clients, not as a replacement for genuine friendships. Understanding these boundaries is essential for maintaining professionalism and effectiveness in support work.

I acknowledge my position of privilege in being able to discuss these issues openly. Many higher-functioning individuals face challenges because they are told to accept what they are given without complaint, leading to gaps in support and a cycle of disbelief. Digital skills and clear social media policies should be part of onboarding for support workers to prevent these issues.

The support worker in question dismisses real criticism as engagement and has an attitude of indifference toward client feedback. This unprofessionalism does not benefit her engagement or career. Clients have a right to provide feedback on health and hygiene-related issues, and support workers should be open to it. Disability awareness courses can help bridge this understanding gap.

Another aspect to consider is the impact of mob culture and cancel culture online. Content creators can quickly find themselves at the center of controversy, leading to personal and professional consequences. Platforms themselves advise creators not to give up their day jobs, which is particularly important in the disability community for stability and reliable income.

People often forget that YouTube is also a form of social media. The comments section is public, and even if content is deleted, content creators can still see those comments. Additionally, tools like the Wayback Machine and other internet archives can preserve content indefinitely. Countries that have "the right to be forgotten" laws typically do not extend this right to internet archives because their purpose is to maintain a historical record.

Agencies need clear social media policies and education on digital footprints to mitigate potential harm. Consent for social media use should be mandatory. The content creator I mentioned avoids naming her employer, possibly due to a lack of social media awareness or an attitude of indifference, believing her industry experience guarantees her another job. However, I have seen many people, including myself, face consequences for private online comments, raising concerns about what might be said privately if such statements are made publicly.

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