Annie in wonderland

Hi all so I am writing this as a follow up to my ablism video and I know that the first rule of the internet is to stay away from the comment sections but when you get this often used phrase around the only true disability is a bad attitude it comes across as rude and simply ableist as people get very uncomfortable very quickly when you start talking about disability and I have to say that yes at times a bad attitude gets in the way if you have a disability but this comment I know the person had “good intentions” but we know that the road to hell is paved with good intentions and we need to be able to work with what we have but at the same time we need to acknowledge  that disability is very real and there is very real links between disability and mental health due to comments like this one and I do admit that I felt attacked with what was said as I have worked so hard to even admit that I have disability’s and am worthy of help and assistance, we see that people need to be able to...

I am going to be doing a very deep dive hear but I know that people want to talk about the NDIS and what is wrong with it but we are getting side tracked by the fact that people who aren’t in disability circles or don’t know anyone who receives support, don’t know how complicated it is to get onto any type of care scheme that is offered in commonwealth countries, and even then the level of support you get can be questionable, and for me I present as very high functioning because I am until I get fatigued or tired and then I need to be able to ask for support and I have a very hard time doing this but this bring me to introducing what I am going to be talking about and it something that is very hard and complex to explain, that is restrictive  practices and in a very broad sense they can fall into two categories, Approved restrictive  practices and unapproved restrictive  practices,  these are practices that are generally outdated and as evident in the name used witho...

  This post is on the back of a few Netflix specials that I have watched and I am starting to transition to less chemicals and preservatives in my life so this requires a little more organization than I was expecting but organization as I am learning isn’t a one off it is a process and I am also learning that for me being blessed to have access to support workers ( care givers to the USA readers) I am then able to ask them for help.   But one of the things that I am realizing is that natural doesn’t equal safe all the time I am watching, unwell about the wellness industry and we need to be able to think critically about this industry as if you put industry after a word you need to ask what are they selling and for me, I am an amazon associate and I am honest about it as well but I do state that I am not a medical professional and to check   if it’s ok for you. But I am starting to go over to natural washing up and cleaning tools as I am going though my existing stas...

This is something that I have wanted to write about for a very long time but really haven’t had the guts to write about it and I know that I bang on about people with disabilities being abused and this is true, but we also need to talk about the flip side of this being, that Support workers do get abused at work as well. I need to put a really important point in here as well that have emotions and I have blowen up at support workers in that past but what is important is how you handle it and what is considered abuse differs from person to person but from a legal perspective it can fall into a couple of different areas.   I have taken this from Safe work Australia, and it also documents that home care workers are in a higher risk of abuse. W orkplace violence and aggression can be:  ·        physical assault – such as biting, scratching, hitting, kicking, pushing, grabbing, and throwing objects.     ·   ...

  https://spotifyanchor-web.app.link/e/6dAmalcTDCb   Hi all so this is day two of getting my health back and that includes connecting with others that is a massive thing for me as I have massive trust issues so I am learning how to trust others and to ask for help but I am also walking a very fine line of is it simply asking for support or is it, entitled behaviors. As in getting my health back the one thing I forgot was my mental health, and that is really important to me as a person with a disability what we could consider self-care others could consider entitled, but it’s a delicate dance of is it entitled or is it a person's reactions to boundaries and this is a really interesting thing to consider, as sometimes when you get the support you need, I have seen a couple of “ interesting” reactions. These are all from my nuclear family from my wider family it’s seen as taking pressure on my family and this is kind of weird because my family feels “put out” by the fact th...

    So last night I watched the Netflix documentary Poisoned and I think I need to start out by saying something really important. I am located in Australia and we don’t have the food production monopolies and lobbyists that the USA does but it got me thinking on another random tangent, that is cleaning, don’t get me wrong we need to be on top of where our food comes from and I am going to start making major changes in my life around my diet and start making some documentation around it as I know diet is a major player in having auto immune diseases go into essential remission, before having to go onto very heavy medications that are used in cancer. But I as I do went down an adjacent rabbit hole and still haven’t reached the proverbial warren, that is food safety at home and adjacent to that cleaning as you can have a tidy home that is not clean and I know, as I have been that person and I admit we all get busy and we all need to work and families can’t have one person at h...

 I am studying at the moment but saw a post from a disabled creator on this platform talking about internalised ableism and I get that is a thing, as I know that I have it most of the time but where do we start to draw the line and say that we aren’t responsible for educating everyone we meet about our disability and that there is sometimes for hidden or physical disabilities a time to meet society’s expectations, for what we are about to do. We can’t expect the world to change for us when we aren’t willing to put in the work  and I know that this opinion will cop a lot of backlash but we need to be accountable to the best of our abilities and acknowledge how far we have come and we need to be thank full for what we have as we have more than the people who came before us and fought for us to have equal access and are still fighting for equal access, but what I don’t agree with is equity as this removes all the learning opposites and provides a space for learnt dependence and...

  So, I was seriously considering if I wanted to post this to the blog and linked in but I feel like I need to as I saw a headline and I couldn’t access the article but it was the headline read, Disability forgotten diversity. But are we “really forgotten” in a work context as I would love to be working and being social as work is more than the tasks, we do for someone with a disability it might be the only chance they have to be social and to be able to work with others.     However, I do see many people put into the two hard basket especially hidden disabilities and the ability, to work remotely or even from home as many workplaces aren’t simply accessible.   Also more than that we are seen as a burden and a risk to have on board unless in a “supported work place” often a polite euphemism for a workplace that is legally allowed to pay less than minimum wage on the premise that we will lose our benefits, but often ( depending on the country) are encouraged to ha...

This is a post that I wrote in my head last night as I am in the middle of potentially changing supported living houses but staying with the same company and I can’t remember something heartbreaking. I can’t remember the last time someone physically said they love me, or I am doing good or congratulated me for doing something well, as my family often has concern for me, and I don’t see that my actions have consequences for other people. But please don’t feel sorry for me first and that my family and friends do they do it by there actions and this has lead me to some really interesting feelings of knowing I am an adult but at the same time feeling really alone in the world as I see my friendship group that are “ able bodied” go to work and have the arguments about the kids and I really feel like I have missed that boat on having a stable romantic relationship due to me not being able to really trust anyone and that actually includes myself and my support team in the house as they have...

I was going to post this to Linked In but now after some reflection I didn’t and I feel it’s much better to hear Let me know what you think we see that people need to be aware that I am feeling this way and I see that this comes from a place of not being heard and seen. I can’t remember the last time that I felt seen or heard and got told I did something well, I got pitied or yelled at for doing things wrong, or breaking procedures/policies I didn’t know existed.  So, let's jump into it. So I was on this platform and I have been posting my content for a while and I do need to consider what I post given that this is a site for professionals and job seekers designed to connect them. However, I am seeing, and much to their credit disability activists posting their content and I don’t have much to do with my “activism” community in my area.  I thought that I would explain why why I don’t like the term “activism” and prefer spokesperson, as it gives a much more dignified tone a...