Annie in wonderland

  What is person-centred care in the disability approach?   So we need to start out by saying that there is several approaches to disability care and they have very different world views attached to them, the first one is the medical model of disability that says that we are broken and that we should be cured and that then we can contribute to the world. The second one is the social model of disability which says that it is the society that disables us and that we need to be aware of this and that by fixing some things in society the disability will have less impact and it also makes people aware that disability isn’t something to be feared it is just a way of being, and that disability impacts people in very different ways as well. So this is where the person-centered approach comes from and we see that this is an offshoot of the social model of disability and that this is where we see that it is fundamentally different in peoples view’s in that if the person has a care...

So this is going to focus on Magnus from the TV and book series shadow hunters, So as we are aware Mangus is a Warlock and the warlocks are immortal downworlders, the world is quite brutal world expands as there are Shadowhunters that are born to hunt demons and to help protect the world from demons and they live in what they call the shadow world and this world is quite a brutal world and even though it does have it’s own rules of engagement and equivalent to the Geneva convention, and human rights, the accords and we see that Magnus was at the signing of the accords and have seen things change over the centuries of both Shadowhunters and mundane attitudes towards down worlders or classes and the shadow hunters seem to follow this trend.  And there are a lot of differences between the shadow hunters and the down worlders but there is also a loss of relics that belong in this world.    Some through design and some through war and age, as we see in the books that there is ...

  Image by  Sasin Tipchai  from  Pixabay   So this is going to be a great blog post to write and I see it as a great win so what is good and bad support this is an interesting topic to get into in a way as it can be quite subjective what is good and bad support as there is a difference between active and passive support and the classifications of support workers as well. So support workers are there to support you to achieve your goals and we see that this can be quite a difficult thing as you need to be aware of some things about a support worker first, the first thing is that they are paid people, so they are paid to support you, and this means that they don’t have to do things for you.   They are not servants, maids, or your mother, and this is a difficult thing to be aware of as well.   Even when an organization says they are person-centered we need to remember that they are running a business and that this is why they have scheduled support time...

  What is the digital divide and how is it relevant in disability care? I So let’s start by breaking down what is the digital divide, it is basically those who have access to stable, internet that isn’t blocked by the state or other bad faith actors.   However we do see that people need to be able to afford to pay for the service and this can be another issue if you can’t access the internet then how do you, do most things that people do online these days? Like job searching, like watching streaming services or on-demand TV, we see that this is distinctly different from those who for ethical, health, or religious reasons have chosen to go screen-free In saying that we see that in being screen-free in their home they might have access to screens through other places like their work or public libraries, They understand what is a conscious decision and they can work around it.   However, what I am talking about is those who don’t have a choice in the matter because t...

 When I started this blog I had a lot going on in my life I had to move back into the family home, and this caused stress that I didn't even realize until now.  However, I did rebuild my life with the help of my family, friends, and support workers under the NDIS. However, I want to do this post as a warning to others to not get into the situation that I did and to understand to "trust," the NDIS system as when it works it works really well.  However I see that when the system doesn't work it really doesn't work well for people and we see that this can be a massive issue as well and one of the core reasons I started the blog as I would like to be a disability advocate but we see that this is a space with lots of diversity as people with disabilities that are very diverse as well, so  I am not sure how to get change happening but I can use my talents and write and raise awareness there as well. I want to be able to change people's minds around the ...

This is something that I have been aware of for a while but disabilities that are caused by health conditions are something that we need to talk about, and we don’t know what people are aware of as well.   As being disabled is expensive due to needing to go to specialists and generally not working so having to cut back on things the first and easiest thing to cut back on is entertainment and this for a young person puts them at risk of social isolation further and really does impact their disability further as it serves to isolate them further as well. We see that this can be a massive issue and can have a massive impact on mental health issues as well, and we see that people are not able to socialize due to not having the funds to do things, there is a term for it in people without disabilities it is called city life syndrome and we see that this is at times amplified in people with disabilities as well, so the impact of the physical disability I know that there are other crea...

 This is a hard one to talk about because the internet and googling have saved many a disabled person at the hands of a time-poor doctor and they have been able to self-medicate but this is the issue that in doing this you might actually cause yourself or another person harm by doing this.  There has been an explosion of people gaining access to medications through googling and getting access to medications that are meant for others' medical condition the big two I can think of is people gaining ADHD medications for study drugs and people using some types of insulin for weight loss when you don't have diabetes or another condition that causes weight gain.  So you make it harder for yourself to have good health care by not trusting doctors or by pushing the doctors to make a diagnosis so you can get what you want, it harms everyone and this isn't a good thing in a way that we see that people want to help themselves but we see that if you are saying things like everyon...

As we grow up, we get taught several things, learn through our experiences, and learn that in society we are expected to play a certain role.  So, for those who are female, we see that the life script is school, university or training working and marriage and then kids and a family. For Males, it’s the same script just marriage kids and family are optional. But for either gender, we see that people with a disability are supposed to play the role of learnt helplessness and to be childlike even as an adult. So, parents do flip this script and very firmly tell their children that disability isn’t an excuse and I know that for me learning what is an excuse and what is a reason is a very fine line as well, but we also then see able-bodied adults behave in very naïve ways and this sometimes can lead them to seek diagnoses as an adult. But the script that society wants us to play is the role of the victim and make that our identity. However, when we start advocating for our nee...

  I was writing an article on Medical bias and we see that it can be very hard to spot due to the way medicine is taught, however, we do see that there is a growing awareness of disabilities as we have seen in Australia and the developed word we see that people with disabilities are often seen as the afterthought, or even it is seen that as an adult we can be spoken to and for this also now comes into medical bias. https://www.couriermail.com.au/news/queensland/doctors-pants-fell-down-regularly-coworker-complained-of-being-left-shaking/news-story/96ceb43547057c37a6a2ad1b01a5fc52   But as we see in this article it does become more complex than this as there is a culture of cover-ups in hospital systems due to the lack of investment in hospitals and a lack of support staff as well. However, we do know that doctors and medical treatments have been targeted toward a very specific group. This being white males women and people with disabilities have been left behind and I kno...

Disability and the impact on family and friends and the role of care programs, both good and bad. So, this is going to be a very Australian post due to the NDIS before the rollout of the NDIS care programs were state-based and varied in quality.   We did have some level of care but not a lot. Now it is big business, and we see that it’s a very big thing in Australia and they are encouraging us to work or to start our own business, but the question is at what emotional cost to people. So this is the impact on the people around you so friends and family as if you can’t work and they still want to support you they are the ones picking up the physical costs of running around to the Doctors and other medical appointments and this comes at a cost to their car and the petrol as well. We then see that if you need help with budgeting and household tasks and can’t get help at home or are taking a break from the support that people need to keep your house running, they are essentially run...