Posts

Building Foundations: The Importance of Organization in Supported Living"

I naturally struggle with organization, but living in supported living in Australia and attempting to live independently (despite not fully succeeding) has taught me the importance of being organized. Some people have the advantage of parents or caregivers who emphasize the significance of organization alongside education, which certainly helps. I’ve discussed the challenges that come with having a disability and trying to stay organized on my YouTube channel, and I believe there are several factors everyone should consider. Now that I have clearance from my GP (primary care doctor) to look for part-time paid work, I realize there are skills and general health considerations I need to work on. Some of these are innate, stemming from my family background, but the most important thing is establishing a routine. Routines offer stability, especially for those with psychosocial disabilities, and having well-trained, consistent staff is crucial, though this will look different for everyone.

"Taking Responsibility and Embracing Reality: My Journey Back to Grounded Living

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Introduction: In an ever-changing world, it's easy to get caught up in distractions and lose touch with what truly matters. In this post, I'm sharing my journey of getting back to reality—taking responsibility for my life, understanding the importance of staying grounded, and embracing the challenges that come with it. Whether you're facing similar struggles or looking for inspiration to realign with your true self, this reflection offers valuable insights and practical tips. Section 1: The Power of Taking Responsibility Owning Your Choices: One of the most important lessons I've learned is the power of taking responsibility for my actions and decisions. By acknowledging my role in shaping my life, I've been able to make more intentional choices that align with my goals and values. Facing Reality: Reality isn't always easy to face, but it's essential for growth. By confronting the truth of my circumstances, I've been able to identify areas where I need

The Power of Lived Experience: Bridging the Gaps in Disability Care

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### The Power of Lived Experience: Bridging the Gaps in Disability Care In my recent video [insert link to the video], I touched on the importance of lived experience and the need for diverse voices in conversations about disability. But beyond that, there's a pressing need to address the realities of government care programs like the NDIS, the perspectives of providers, and how we can all work together to ensure that person-centered care truly supports not just the individual but their entire support network. **Understanding NDIS Cutbacks: A Reality Check** With recent cutbacks to the NDIS, it's more important than ever to be realistic about what to expect from a government-funded care program. The NDIS is designed to bridge the gap between the high costs of living with a disability and what individuals can afford, but it’s not a cure-all. It’s a valuable resource, but it’s one piece of a larger puzzle. As participants and families, we need to manage expectations and understan

My Coastal Escape Plan: A Smart Investment for Mind, Body, and Wallet

Hey everyone, I may or may not have mentioned this before, but I recently went away for a weekend, and it sparked a new goal in me. I'm now seriously thinking about getting a unit down the coast—maybe in an older building since I live in a regional area. But there's a lot I still need to figure out. First, do I have enough to buy a place? And if so, where exactly do I want to buy? Would I rent it out or keep it as a weekend getaway? I'm leaning toward a unit in a beachfront complex, though it would likely be an older build. There are a few things that are must-haves for me, like a dedicated parking space, a clean pool (and a spa would be nice), a full kitchen, and a bathroom with a proper bath. One quirky preference I have is not having to walk through the lobby with groceries all the time, so a separate entrance for residents would be ideal. However, I do like the idea of having a front desk and housekeeping services available. But how much would that cost? How would I fur

Weekend Reflection and Moving Forward

 Here's an updated version of your post, incorporating your preferences: --- **Weekend Reflection and Moving Forward** As I write this first draft, it's my first night back from a weekend away. I did fall into some old habits, such as blaming others, but I recognize that and can work on those issues. It's time for me to reassess my strengths and focus on what I can change in my life. One thing I can change is spending more time offline. Another is cutting back on buying unnecessary clothing. I've also realized that my NDIS funding might be at risk, so I need to be more mindful of my actions in the house. With NDIS reassessments being a topic we're all discussing, I need to ensure that I’m prepared, as I don't want to risk having to move or find a rental on my own. I'm also trying to figure out what's going on with my YouTube channel. My subscriber count recently dropped from 109 to 94, which was a bit disheartening. However, I need to focus on my long-te

A great getaway.

https://youtu.be/SRJJHfzbDfE?si=V1BcFy2YD__4yhMZ In my latest vlog, I share the excitement of a weekend getaway—something that every girl needs once in a while! This wasn’t just a day trip; it was a full-on girls' retreat, filled with fun, relaxation, and adventure. What made this trip even more special was that we spent our own money, proving that you don’t need NDIS funding to treat yourself to a refreshing break from the usual routine. The getaway was a perfect reminder that, sometimes, all you need is to pack a bag, grab a friend, and set off on an adventure. We explored new places, enjoyed great food, and indulged in some much-needed downtime, all while bonding and creating memories that will last a lifetime. Whether it’s discovering hidden gems or simply relaxing in a new environment, the trip was a beautiful blend of travel and friendship. This weekend escape was a testament to the power of spontaneity and independence. Living with a disability doesn't mean every experie

Respecting Others on an NDIS Day Trip: A Guide to Appropriate Behavior

 Going on a day trip with a group through the NDIS is an exciting opportunity to explore new places and connect with others. However, it's crucial to remember that being part of a group also comes with responsibilities, especially when it comes to respecting the people around you. Whether you're new to NDIS group outings or a seasoned participant, here are some key guidelines to ensure everyone has an enjoyable and respectful experience. 1. Turn Up on Time Punctuality is a simple yet essential way to show respect for others. Arriving on time not only shows that you value the time of your support workers and fellow participants but also helps ensure the day runs smoothly. Late arrivals can cause delays, affecting the entire group and possibly shortening the time you have to enjoy the planned activities. 2. Personal Hygiene Matters Before heading out, make sure you've taken care of your personal hygiene. Having a shower and wearing clean clothes are basic courtesies that make

**Life Update: Navigating Change, Health Improvements, and Personal Growth*

Hello, everyone! I wanted to take a moment to update you on what’s been happening in my life lately. A lot has been going on, and I’ve been reflecting on some of the changes, challenges, and growth I’ve experienced. ### Embracing Change and Finding Stability Over the past few months, I’ve been navigating significant changes in my routine and support structure. One of the biggest adjustments has been finding stability in my day-to-day life. As many of you know, living in a Supported Independent Living (SIL) home comes with its own set of challenges. I’ve learned that having a stable roster and a well-mapped-out day, week, and month is crucial for my sense of safety and well-being. When everything is predictable, it’s easier to relax and focus on personal growth. After all, if I don’t feel safe at home, where will I ever feel truly safe? ### Improving Health and Setting Boundaries I’m happy to report that my health has been getting better. It’s been a long journey, but I’m seeing positiv

Understanding Lies as a Trauma Response in Disability: Why Believing Clients and Ensuring Stability Matters

In the world of disability support, the truth isn't always straightforward. For many individuals, particularly those with a history of trauma, lying can be a survival mechanism—a way to cope with a world that often fails to believe them. In this post, we'll dive into the complexities of lying as a trauma response, explore why it's crucial for organizations to take these lies seriously, and discuss how to foster a culture of trust and understanding. We’ll also reference a compelling [YouTube video](https://youtu.be/wnUmCJDZJ6E) that sheds light on the intersection of disability and truth-telling, providing further insight into why lies occur and how organizations can better respond. **Lies as a Trauma Response: A Deeper Understanding** Lying is often seen in a negative light, associated with deceit and manipulation. However, for many individuals with disabilities, lying can be a trauma response—a means of self-protection. This behavior is particularly common among those who

The Importance of Understanding Sensitivities: A Message for Support Workers

In the world of support work, the ability to read the room and understand the unspoken needs of clients is not just a skill—it's a necessity. One aspect that often gets overlooked is the assumption that a client wearing headphones all the time is simply addicted to the internet. But what if that's not the case? For some people, headphones aren't a luxury or a sign of disinterest—they're a survival tool. Many individuals with sensory sensitivities use headphones to create a buffer between themselves and an overwhelming world. Whether it's the constant hum of white noise or specific calming music, these auditory aids can be essential for coping with everyday life. In certain situations, like living in a townhouse where noise travels easily, clients may be avoiding you, not because of disinterest, but because they are overwhelmed by the noise. Being loud and bubbly isn't always the right approach, especially when your client is using headphones to manage their envi