Annie in wonderland

  So as the title says I agree with Dr. Peterson. Some in the disability community feel that he doesn't really get the limits we have but he is speaking to a very wide audience. Generally, an audience of lost disaffected people mostly men, who have been raised on a diet of everyone gets trophies, social media, and learning about their rights but not their social responsibilities.  He is teaching them very basic topics that turn a lot of them from men who are angry at the world to men that are taking responsibility for their lives.  So some rules are sensible and were taught but the way that social media has stripped away critical thinking and the ability of people to form relationships in real life and to grasp that things that you say online would have real-world consequences. To have someone talk the real honest truth to them seems to be the wake-up call that they needed. 12 Rules for Life by Jordan Peterson: Summary, Notes, and Lessons - Nat Eliason One of his rules is...

I live with disabilities and receive limited support through an Australian program called the NDIS ( National Disability insurance program.) at its core and at the time of its inception was designed to improve the lives of people with disabilities, to live " more normal lives,"  This required the establishment of what are called support organizations, and support workers. I asked a person who is a support worker to write about what a good support worker is. This is now what a bad support worker working with people in a vulnerable state can do.  I have heard stories and would love people to email me, or comment about what they have experienced good and bad.  Convince people to enroll in programs and training courses that benefit them and not others  Talk to medical professionals and convince them of unnecessary medical treatments.  To promise what isn't realistic for that person, and tell the person that they just need to try harder.  To have day progra...

   This is a response to a close friend of mine being asked what is it like being a support worker, under a program called the NDIS. This program is a program that is supposed to help people with disabilities yet it seems to be a burden to most and create more issues proving disabilities to get the care they need.  So I asked her the questions.   What is it like being a support worker?  Being a support worker can be very rewarding, even making a small gain with someone is so rewarding. However, it also has its challenges, some of these can be overcome but others can't but you keep plugging away. The difference between a good and bad support worker is that they think of the person as a person not a number or an easy day's work. The support worker will look to find things that interest their client or suggest alternatives and treat them the way they would like to be treated themselves. The most frustration about clients was when you know they can do something...

  Shadowhunters & Beyond Screening 2016 Q&A Panel - YouTube   This is a really interesting discussion around this show it is a great show and something that I see that is very rare is the cast are passionate about the representation of the character and something that resonated with me was that they listened to people who are telling their own story and that your story isn't the story of the larger group.  The actors seem to really understand this, and the level of research that they do is amazing, to not fall into the stereotypes of the tropes of what people think of not what people are, and not the reality, is this has been brought out, in the time of Covid, and shown the reality of what people can do to tell their own stories.  He was talking about the LGBT community yet I see many parallels between this and disability representation. That our stories aren't the typical narrative of life due to illness or disability and this seems to be a similar thing in ...

  Farewell to Shadowhunters: Harry Shum Jr. Talks Malec Heartbreak - YouTube This is a really interesting clip as it shows the actor having a deep understanding of what the character he plays goes through. There is an interesting line when he says everyone is happy for his partner but no one is reaching out to his character, and there he goes to family yet his family isn't the best for him and he knows it.  This is so familiar in disability that it hurts, that it's not going away yet people want to push down the pain of it so hard, especially around what people expect of someone with a disability, to have a "normal," life and what is a normal life.  This for people with disabilities is such a loaded question as we aren't a monolith or even have similar viewpoints.  We are at increased risk of abuse and exploitation and understanding this is a huge step forward to accepting that we are one group that we do need help and understanding to see our place in the world a...

  Why I can’t learn to love my disability My Disability is a part of me yet I can’t learn to love it, but I can learn to accept it. To accept that I will always be different. Be the person who will never have a normal life and whose family will get frustrated with me, because I used to be able to do so many things for myself, but now I can’t and will need support for the rest of my life. I can’t love it because of the way my life has played out, I can’t be an inspiration because it does hold me back in ways that frustrate me and my family as we always thought I could live a normal life, but I am coming to the realization I can’t and that this will impact me and everyone in my life. I never used to admit I have a disability and this in the long run hasn’t done me any favors.   I am what they call high functioning but high functioning doesn’t mean normal – it means that I appear to be able to do most thing’s for myself – but in reality, I can’t. High-functioning Definiti...

 So I realized I was going so deep into scrolling into my phone at night it was starting to affect my sleep hygiene and this hasn't been great at the best of times.  I didn't even realize that it had a name. It is called Revenge Bedtime Procrastination.  Revenge Bedtime Procrastination: Definition & Psychology | Sleep Foundation For me, it started when I had to move back to the family home and this came with a lot of issues that due to my health and disabilities we are still working through.  However talking with my care team made me realize that people with disabilities that don't work and are on benefits often have very little enjoyment and movies and the internet are the way that they interact with the world, this was even pre-pandemic.  So for me, I have charted my failure of getting back into a good routine, as I did want to do a complete digital detox but I live in an area where Covid is still very much a risk, and being a blogger doesn't help however ...

  What it is like living with a neurological disorder. So this is going to be a bit of a more personal post as I live with several neurological disorders, as well as physical illnesses that interact in a weird variety of ways.   So we need to start with the basics, this explains very well what is a neurological disorder. Neurological disorder - Wikipedia   In later posts, I will go into treatments in a very broad sense and how they work and their side effects and not only physical side effects but social and emotional.  W hen someone is diagnosed with a neurological disorder their whole lives change and this includes their family and friends. In my case (and some of it is well deserved) thinking that having a large amount of control over my day is a good thing, if I want to do something different, I have to ask, and this and other topics have created a lot of issues for me.   I live in a semi-constant state of wondering who I have pissed off due to their re...

   So many people have said that the best thing that you can do for yourself is to never give up, but in the context of disability sometimes it is the best thing you can do, for your physical, mental, and emotional health.  Some really obvious things are:  Giving up trying to go at the same pace as others  Trying to achieve the same goals as others (this might be true for some but not others)  Trying to please others all the time - this might lead to others being angry because you are no longer a people pleaser and taking a risk. (I will do a longer post on this one as I am seeing so many people for the sake of having friends and support not understand the difference between friendship and being used)   Pushing yourself to be normal and being fatigued because of it. - This just doesn't work and can make your disability or illness so much worse  Seeing that work is the point of life and feeling guilty if you can't work - yet you still nee...

 This is a continuation of the conversation I felt I needed to start around the way disability is seen and written about in the media. There are several issues that I have been made aware of that I see that this is a very complex issue and that there is no easy answer to it.  It can be very hard to not have it contrived as simply a way to move a storyline forward  So in moving a storyline forward in episodic TV and this is the major topic I see that there is little awareness of, it can be hard to follow several character arcs and if it doesn't fit the narrative it won't work long term.  This is why having a character with disabilities in a high school setting does work well, yet having a disabled person in a work setting you are limiting it to what stories can be told.  It can be hard to find a story that lives on its own merit  So in living on its own merit what does this look like in people with disabilities if...