The Power of Lived Experience: Bridging the Gaps in Disability Care

### The Power of Lived Experience: Bridging the Gaps in Disability Care

In my recent video [insert link to the video], I touched on the importance of lived experience and the need for diverse voices in conversations about disability. But beyond that, there's a pressing need to address the realities of government care programs like the NDIS, the perspectives of providers, and how we can all work together to ensure that person-centered care truly supports not just the individual but their entire support network.

**Understanding NDIS Cutbacks: A Reality Check**

With recent cutbacks to the NDIS, it's more important than ever to be realistic about what to expect from a government-funded care program. The NDIS is designed to bridge the gap between the high costs of living with a disability and what individuals can afford, but it’s not a cure-all. It’s a valuable resource, but it’s one piece of a larger puzzle. As participants and families, we need to manage expectations and understand that while the NDIS can provide support, it cannot cover everything.

**Stepping Back and Embracing Diverse Perspectives**

As I mentioned in the video, I'm stepping back and reassessing my role within the system. It's become clear that providers often have a different view of what care should look like, and that's okay. The key is working together, finding common ground, and recognizing that while there may be differences, our goals are ultimately aligned. Providers bring professional expertise, while those of us with lived experience bring practical, everyday insights that can make a real difference in how care is delivered.

**Person-Centered Care: More Than Just the Individual**

True person-centered care goes beyond focusing solely on the individual receiving services. It includes their family, friends, and broader support network. Paid support workers play a vital role, but so do those who are there out of love and commitment. A holistic approach considers the needs and contributions of everyone involved, creating a support system that is sustainable and truly centered around the person's life, not just their immediate care needs.

**Moving Forward Together**

As we navigate these changes and challenges, it’s essential to keep the dialogue open between participants, families, providers, and the NDIS. By bringing together the insights of lived experience with the expertise of providers, we can create a system that is not only functional but also compassionate and responsive to the real needs of the disability community. It's about more than just bridging financial gaps—it's about bridging the gaps in understanding and care, too.

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