Annie in wonderland

    So this has been on my mind for a while now and it’s the outright misinformation that is out there about disability and the NDIS, I am finding despite the chorus of content creators trying to educate people the legacy media seems to be louder and more persistent, but at the core lets be real the system is broken and we need to do better for everyone from support staff to Allied health professionals that write the reports to get us the funding we need at times that funding isn’t enough and then that is where the blame game starts around cost blowouts and people gaming the systems. So that brings me to the hairy end of the topic is the blame game and people thinking that participants have it easy( if you’re your decision maker it’s not) it can seem like a full-time job and this is where people get so wrong about who to blame as there is not an easy fix but there is several that are starting to emerge, the cost guide cap is a big one. Cracking down on dodgy providers and my person

Title: Navigating Resources: A Guide for People with Disabilities Introduction: Living with a disability comes with its own set of challenges, but it doesn't have to mean navigating the world alone. Fortunately, there are numerous resources available to assist individuals in leading fulfilling lives while managing their unique needs. From local libraries to online services, and from public transportation to healthcare programs, let's explore a variety of resources that can empower individuals with disabilities to live independently and thrive within their communities. Local Libraries: Local libraries serve as invaluable resources for individuals with disabilities. They offer a plethora of services including accessible materials such as large print books, audiobooks, and e-books. Additionally, many libraries provide assistive technologies such as screen readers and magnifiers, as well as dedicated staff trained to assist patrons with disabilities. Furthermore, libraries often ho

In a shared housing environment where several individuals reside, the dynamics can be complex, especially when support workers and caregivers are involved. For those receiving care or assistance, it's essential to foster a positive and productive relationship with these professionals. While maintaining professionalism is crucial, acknowledging the human element is equally important. Here are some tips on how to work effectively with support workers and caregivers in such settings: 1. Establish Clear Communication Channels Communication is the cornerstone of any successful relationship. Establishing clear channels of communication from the outset is vital. Ensure that everyone understands how information should be relayed and how feedback or concerns can be addressed. Regular check-ins or meetings can help facilitate open communication and address any issues promptly. 2. Define Roles and Expectations Clearly defining roles and expectations for both parties is essential. Understand w

  In the realm of disability discourse, language is a powerful tool that shapes perceptions and attitudes towards individuals with diverse abilities. Among the myriad of terms used to describe different aspects of disability, adjectives like "lower functioning," "higher functioning," and "behaviours of concern" have been subject to debate and scrutiny. However, there's a growing understanding that these adjectives serve a purpose in effectively communicating the unique experiences and support needs of individuals with disabilities. Rather than shying away from these terms, it's time to acknowledge their value and promote a more nuanced understanding of disability. First and foremost, it's essential to recognize that adjectives such as "lower functioning" and "higher functioning" are not inherently derogatory or demeaning. Instead, they are descriptive terms that provide important context about an individual's level of fu

  In today's world, where discussions around disability and cultural differences are increasingly prevalent, the significance of language cannot be overstated. Words carry weight, shaping perceptions and attitudes towards individuals with disabilities. However, amidst this discourse, there's a growing concern about the policing of language by those who may lack real lived experience of disability. It's essential to navigate this terrain with compassion, understanding, and a genuine commitment to inclusivity. In Australia, terms like "higher functioning" and "lower functioning" are commonly used to describe individuals with disabilities. While these terms may be deemed acceptable within certain contexts, it's crucial to recognize the diversity and complexity of disability experiences. What might be acceptable to some may be offensive or reductive to others. As such, sensitivity and respect must guide our language choices. Moreover, beyond mere semanti

  In the intricate dance of navigating life with invisible disabilities, there's a crucial partner often overlooked: support workers. These individuals play a vital role in providing assistance and ensuring that those with disabilities can navigate daily life with as much ease as possible. However, when support workers fail to understand the unique needs of individuals like myself, it can lead to frustration and challenges that could easily be avoided. Let's take a closer look at my own experience. Living with ADHD, epilepsy, minimal brain damage, Shojrin's syndrome, and peripheral neuropathy presents its fair share of obstacles. Yet, it's not just the disabilities themselves that pose challenges; it's the lack of understanding from those tasked with providing support. Despite my efforts to communicate my needs, some support workers have struggled to grasp the nuances of my disabilities. For instance, ADHD isn't just about being easily distracted; it encompasses