Annie in wonderland

This is something that I have had in draft form for a while but it needs to be said and that you are not a burden as we see that in coming up to Christmas we will have well meaning but uninformed people talking to us about life and asking us when we are getting a Job, going back to study or moving out of home.  Also l feel that this time of year for a lot of people brings a lot of stress so we need to say to people you are not a burden and  if you look at the volunteer hours if you had to pay someone what people with disabilities do their would be a massive economic burden to this and often people with disability’s do this for free, or for under the award wages. We also see that people are talking about what is in the news and often this is the NDIS and we see that this is a whole other issue due to the fact that people see it as a  cost blow out and don’t really understand that it is a complex program and often it’s not the clients that are defrauding the system it i...

  So this is a continuation of my series on disability support services and office culture and ethics and I am hoping in this post to answer some of the questions I asked in the previous posts about the services and support people how do you manage this to make sure they are effective, well-trained and right for the person using the service and how do you spot if the company has a good ethical framework that is apart from the thinking about disability as a moral failing.  As if the disability is thought about as a form of morality does this then give the service providers the right to take a medical model approach to disability what type of framework is this mindset working from and how is it a good framework to work with who does it help the service provider or the person they are supposed to support?  This is a dangerously outdated model of care and it states at its core that disability is something to be ashamed of and therefore you need to be cured to be of worth to...

  Disclaimer – That these are my own lived experiences and understanding from the research that  I do around the NDIS and health-related topics please be aware that it is informational only and not to be used as a substitute for professional advice or working with a Planner, Disability Advocacy service or talking to your Medical and Allied Health team.      So this is a continuation of disability and ethics in disability service providers, I found that I needed to go back and seek out the very basics around this to educate myself on this as well.   As, unfortunately, ethics can be a tricky subject when it comes to disability because personal ethics play a role as well, and personal ethics vary from person to person and the training from disability service providers varies from person to person and organization to organization as well as having a good framework that they work from.   A good ethical framework is one that everyone from the boss down is aw...

Disclaimer – That these are my own lived experiences and understanding from the research that  I do around the NDIS and health-related topics please be aware that it is informational only and not to be used as a substitute for professional advice or working with a Planner, Disability Advocacy service or talking to your Medical and Allied Health team.    So this is going to be an interesting one to write as I expect a lot of pushback from this post and we see that people need to be very aware of this when choosing a support provider or support worker, so anything around disability-related supports.  Disability-related support is a very tricky topic but in Australia, this is defined as support to help a person live a more ordinary life despite having a disability.   In   Australia, we have the NDIS ( the National disability insurance scheme [i] )   and it is a scheme that helps people with a disability to live their best life. However, it has ...

Ecco park is an interesting episode to end on and I admit that I did skip a few episodes that are mostly marking for other podcasts but it really does make you think this series as it is set in a world that we are approaching very closely and to me is very reminiscing of disability intuitions for the clones they where prepared for the outside world but at the same time they weren’t and it is where we see a lot of what if questions start to arise.   https://open.spotify.com/show/5kPqdtwaSB6wj7QJhg4IdJ?si=0cf89988850d41b0   These questions are what is ethical to do how is it ok to choose your children if you could, and what would you do if you could take over another person’s life and get away with it? Where does addiction come from, and how to deal with it, it is a thriller in the fact that we see it could be very easily happening with IVF babies and the increased screening for genetic defects and potential disabilities, and around the right to life movement, and we see...

So I am still in the process of unpacking Mangus from Shadow hunters as he is a very different character in the books, movie, and tv adaptions and we see that in the TV adaptations this was due to copyright issues and licensing to use content from the books as well as rating issues as we really can’t have Magnus an 800-year-old warlock dating a 16-year-old shadow hunter so it made sense to make sure that they aged up the characters and Harry Shum jr will always be my Magnus. I have only watched certain bits of the movie so we need to be aware of this but I see that Mangus is very open but very private at the same time I talked about the box before and how it contains memories of past lovers and we see that this becomes an issue for Alec as it reminds him that he will die and Mangus will not and this is very difficult to accept, and it is very similar to when people with disability’s use things that aren’t considered to be “age-appropriate,” but it needs appropriate to their needs suc...

So these are very controversial documents in that if you don’t have all the support workers on the same page it can be very difficult for people to stick to them and unethical support workers will use them against some people but when used properly are very effective in reducing unwanted behaviours through a variety of means and this is where restrictions come into play as they need to be used in conjunction with other things such as therapy and they can only be implemented by a positive behaviour support specialist and often a support worker will need to be trained in how to implement them safely and positively that helps support the self-development of the client and stops the behaviours.  However with any challenging behaviours we see that it is only used when people are unable to use other means to deescalate challenging and difficult behaviours’ and often these are a learnt behaviour  and this can be behaviours’ such as manipulation of a support worker, through g...

  This   is a post that I have hesitated to write but it needs to be written as we see that many providers have there own take on this but there is very little written about when it comes to a   clients perspective.    So it is how to get the best out of your NDIS plan. So this is written entirely from a clients point of view. The first thing is know what you will and won’t accept in regards from providers as many will talk about person centred care but from that first phone call, you will know how you are going to be treated so are they willing to return a phone call, this is the first indication of how they will treat you in an on going basis. This is the indication of their staffing levels and at the time of writing this is coming up to Christmas and yes it is important to see that people need to be aware of this and understand what is happening, but do they have enough staff to cover   intake enquires. What is the service providers ethos, this shoul...

So this is a really interesting follow-up to how to not out someone with a hidden disability it is why, it’s important to not out them and I touched a little on this in the previous video but we see that there is a lot more behind the why and we see that people think that it’s ok to out people with a disability all the time, whether it’s through a casual breach of their privacy or it is more deliberate and targeted such as forcing someone to disclose personal information that they didn’t want to share to shut them up we see that this harassment does happen and we see a lot of talk about inclusion and diversity but when it comes to the disabled community it has been crickets, due to the complexity of the inclusions needed. We see that this is where the NDIS comes into it in Australia but it is incredibly hard to get onto and it is a constant and exhausting balancing act between, services and being self-reliant, we see that most people don’t see the benefits of it and this is a shame a...

[i] In the books in a previous series called the internal devices, we say that there were two courts in the faerie realm they were the Seelie and is a much more dignified court that resembled the Victorian court of old and the Unseelie court is very reminiscent of something that is found across many cultures called the wild hunt. This is called by many names but given that we are focusing on the Shadowhunters world font is a punishment for people in the Seelie realm, which has several realms but one of its main features in that time moves differently there.   We also see that the shadow hunters have a saying that the difference between the Seelie and Unseelie courts is that the Unseelie court does evil in the open, and the Seelie court hides it. [ii] Shadowhunters treat this realm as very dangerous as in the series some Seelies have a childlike appearance however they are ancient beings not mortal but like many being in this world and even popular culture and mythology they...