Trauma and disablity lets talk about the lack of it.


 

This is something that we don’t really talk about and as we all start to think about the new year we need to start talking about these things as, unfortunately people with be subjected to trauma over the holidays and it can be triggering for people with a disability or who have been removed from families it can be a difficult time of year.

We also are seeing that it can be a time where budgets are tight, and it provides not comfort and job but stress and anxiety of how to provide for a family or contribute to the day. But this is where we need to start talking about how having a disability isn’t inherently traumatising, but it can be, where the trauma start is not with the person who has the disability but with the persons family realising or having testing before the child is born or realising that they are not hitting their milestones or even hitting them early.

With the people who have become disabled later in life or have had   a live changing accident or illness, this is traumatic for the family realising that life will never be the same again. But this is the initial trauma and not the trauma  that is  ongoing as the family starts to deal with the changed situation and outcomes of having the disability and the possibilities of needing care and what that looks like and in countries that don’t have a universal care system this is where it get complicated as a person may need to either pay for care or become a care giver for that person.

It can be isolating and extremely stressful in that situation due to the fact that caring for a family member is taught and not the same as being paid to provide support.

I know that there are some wonderful independent support workers out there, but I am also seeing that they are at times not aware of professional boundaries and what is good and bad support and are on a bit of a power trip and this really does need to stop.

For my community access team I  have a very ethically based support organization who really has made a difference not only in my life but in my families life, in my housing team their has been a few speed bumps but not to major that it can’t be sorted out, as in a Sil house the reality is your not going to be  buddy, buddy with everyone who  supports you and that is ok but respect is mandatory for them and this is where they also need to respect  you and your boundaries and capabilities as well. It’s a challenging situation and it’s rare to find trauma informed support workers to work with people as they need to be not only highly trained but trauma informed and be able to separate the  person from the behaviour but to still understand that  behaviour is a form of communication, but if  a person isn’t attached to reality this is where it gets tricky and we need to be able to meet the person where they are at and have compassion for them and to understand what is going on in their world. Perceived or otherwise, it’s something that takes a lot of practice to not be nervous and to just get on with it, as most “new support” workers are hypersensitive to doing or saying the wrong thing but if you have a bit of common sense that is ok and it’s how we learn.

I have also found that there is a shortage of positive behaviour support practitioners and that we need many more as they are the key in reducing trauma around the usage of approved restrictive practices and that means having the right team and paperwork involved as using these without proper context and support can be traumatic for both the person who has the disability, support workers and other housemates.

It’s unapproved practices that I am against and when they are used very inappropriate due to the fact that there is a very low barrier to entry, around becoming a support worker and the perception is it’s an easy job. It’s not and you need to be able to work with all sorts of different people and expectations and not take away a person’s agency when they have the capacity to work it out for themselves and are motivated to change.

 

RACGP - Trauma-informed care in general practice

Trauma Awareness: Supporting People with a Disability (blueknot.org.au)

Trauma-informed care - Wikipedia

Person-cantered therapy - Wikipedia

Person-cantered therapy - Wikipedia

Action plan - Wikipedia

Action plan - Wikipedia

Active listening - Wikipedia

Disability statistics - Australian Network on Disability (and.org.au)

Comments

My most popular posts.

Isabelle Lightwood and Trauma part three - Shadowhunter's

Why I can't learn to love my disablity

What a support worker can do for you and what the can't part one my story with support