When to breach privacy and how to do it safely for a client's safety




Disclaimer – That these are my own lived experiences and understanding from the research that  I do around the NDIS and health-related topics please be aware that it is informational only and not to be used as a substitute for professional advice or working with a Planner, Disability Advocacy service or talking to your Medical and Allied Health team.   






This is a real interesting topic, and we see that it's one that we need to be aware of as their is very specific widow of what is tolerated in breaching someone’s privacy so you need to know firstly How to do it?  Why you would need to do it and How to tell the client that you needed to tell someone that their privacy has been breached. 

 

It is a very specific thing to do as every person has the right to privacy but direct support workers need to be very situationally aware and this is something that I found gets forgotten about is a client’s right to privacy.  However, there is sometimes when it's in the interest of the client to have their privacy breached. 

 

I find it to be interesting that direct support workers feel it is ok to 

  • Talk about a client in front of another client, and often talk about that client in a degrading or demeaning way in a Supported independent living situation this is when resentment can build as if a person doesn't have the capacity to understand that a person might need help we see that this can become an issue due to the person feeling unheard or unhappy and not feeling like they can speak up about it due to systemic staff shortages and undertrained staff. 

  • That it's ok to talk about their clients in public even when swapping out the names of the clients to keep to privacy but this is still a breach of privacy and often a support worker won't realize that they are doing some of these things. 

  •  To do a handover in front of a client or other support workers often involving them in what doesn't concern them and this can be an issue if the client doesn't have boundaries or understand that this is private information as they will possibly tell family and friends about this situation.  
When these aren't ok but widely practiced due to people not speaking up about it. 

So this is where disability and privacy become tricky in that people often new to the industry are very used to dictating what a person needs to do, and this is going to be a long change to "person cantered practice, as person cantered practice is what the NDIS is based on,  that the person not providers are in charge, while I understand that their is times when this isn't practical or in the best interests of the person we need to remember that they are a whole person and that it might be time to involve their family and friends in their care. 


This is one of the very few reasons to breach privacy so when a person is going to be a danger to themselves or others. So this is very limited in a disability perspective. So it is very similar to health care in that if a person is at risk the support worker or the organization has a duty of care to this person to provide a safe environment and that also means emotionally safe as well. 


So if a person is a danger to themselves this is where a support worker needs to call someone to let them know that a person is at risk or a risk to others what this means will differ from person to person and we see that this is where support workers need to make judgment calls around if the person is " acting," out for attention as they have been trained to behave this way or it's the only way they know to get attention, so this is where positive behavior plans and restrictive practice really do have a place in a persons life and using them when trained to use them when working with a person.  As they are a usage of last resort and something that needs be used with extreme care and training

 

As well as using active and not passive support as passive support isn't great for anyone and can lead to support worker burnout due to not knowing how to work with "difficult," clients often it's not that the client is difficult it's that they haven't been given the dignity that they deserve.  This dignity having respect for their belongings, dreams, and body Autonomy,[i] to the best of their capacity.  

 

This lack of Autonomy is basically when a client has no say in what they do and when or who helps them with daily hygiene tasks and this can be an issue as it could lead to a further perception of a support worker thinking that this person has challenging and difficult behaviours due to the fact that the person has no say in who helps them and this can be a difficult feeling to manage as it reminds the person that they can’t do it for themselves.

 

Or they aren’t given the right level of support that a person is classified to have and we see that this is an issue, due to either funding or having support workers that don't want to put the time and energy into getting past the "difficult and challenging behavior’s" to understand the person and their life. 

 

Also when support worker is doing their notes we see that this can be an issue as well because they often are doing their notes on their phone and who has access to their phone as we have seen that a phone or an app could be easily hacked and this information uploaded to the dark web, but if could be read by a person who shouldn't have access to it as well if a person leaves a phone unlocked and unattended.  

 

 If they are still on a shift or doing a handover and have to leave their device we see that if they are in a SIL house we see that a client could read the phone, or even the person’s family or friends. 

 

We also need to be aware that if a SIL house needs to have paper forms these should be locked away if the house rules state that the clients are allowed to receive guest’s in the house, and they should be allowed some level of privacy with these guests. Each facility would have  rules around visitors and it might be a blanket rule or dependent on the clients, families’ wishes.

 

 

 

Now I have covered how to breach privacy the wrong way, and when can a support worker breach privacy in a safe and legal way.  I mentioned the duty of care and this is something that is at play here in a massive way so the support worker needs to decide if this is something that the client would actually do or if the person is simply attention-seeking.

 

But put simply we need it to be that a person is either going to be a danger to themselves or others  So the facility or the organization would have a framework or list of what to do, before calling someone to help and this is often called de escalation and this is where a person is sat down in a safe place and helped to problem solve, this being a really great example of active support as support can be emotional support and this is an example of emotional support in a way that isn’t demeaning to the client.

 

However, if this doesn’t work the client often and this would depend on the facility would be removed from the situation and this is where a facility would need confirmation that a restrictive practice is being used. As it would need to be documented, and authorized in a way  that fits the providers ethics and the support workers skill set.


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