Heavenly fire and dealing without consent part two
As we see in Chain of Gold, they mention that all the stories are true in a way that you might not suspect. So we see that there is a lot to deconstruct here as well and it is going to be quite interesting to link it back to disability and consent due to current health outcomes due to COVID as the Lockdowns people pause as it was the disability community saying essentially welcome to our world and it showed people what it is like to have your day to day reality controlled by someone else or to be dependent on others for what you need day to day and what happens if they can’t get there. So, it is this that I will go into more depth, and I will also do a post around how this affects the Down worlders as a whole as well as it changes the whole world the question is what makes you is it your personality or your actions?
How does your
personality affect your actions and how do your actions change you if you don’t
have something to aim at this would make you depressed and struck in the past,
just going through the motions. Something that we are seeing more and more of
in disability circles is how to be aware of this and how to not get stuck on
it. As we see that Magnus when he loses
his magic doesn’t know who or what he is, and we see him getting FOMO (fear of
Missing out). So, we start to see that when they start the project, I did
an introductory post about it and showed people what they are doing about it
and how they are doing things about it is complex. As Aldertree thinks he is
doing this for the greater good.
But this is a complex question and the question is at what
point is your good not so good and how is that going to work if it is going to
work well sometimes this is the right answer and we see that it is a complex
issue and when we start to see it in the context of disability we start to see
that self-determination is a lot more complex than we give it credit for and
seeking to understand it is complex as well as we see that a person with
complex needs might not be able to advocate for themselves however a person who
doesn’t have these issues but is “high functioning,” ( like myself) can self-advocate
and advocate for others and something that I have discovered and it is
something that in the medical community we see can still see remnants of it is
that disability can be considered a dirty word however it is an adjective and
it is not an insult it is something that is an accurate way to describe people
it’s not a dirty word.
High functioning in Disability is a very complex issue as
some people who are high functioning can “fit” into the normal world and this
world is the working world with some accommodations and live what we would consider
a normal life, but then there would be people who don’t have this ability and
are still considered high functioning the clinical side of this is [i]
used in assessing people for assessing people in a context of tasks of daily
living and these tasks are things that we take for granted so cooking a simple
meal, meal planning, sticking to a budget, having a job or being able to partake
in community activities, dressing and understanding what is expected of
you and how this impacts your life and do you need support or care to do some
of these tasks I know for myself yes I do need support to do these things and
to be able to do them well.
The issue is at what cost it comes to the person with a disability
and how it makes them feel needing to accept support some countries have amazing support programs but then others don’t have the support and it can become a massive issue around this as well.
So we see that this is a context it is used and many in
the community still see disability as a dirty word as they fear it and fearing
it is only going to make it worse and seeing this fear adds to the context of it
in a way as many people with disabilities do amazing things but don’t want to
get reconsider for it or to understand it in a way that people see it as a
person with a mobility aid or where it is obvious that is it a disability to
them.
However, things like ADHD or a Brain injury aren’t so obvious
and these are things that I live with live however I am lucky enough
to have support around me, and to have this is a great thing as I live in Australia
and this country has what we call the NDIS and it is a program that helps people
with disabilities live a life that would be considered normal by others without a disability so by being able to live with other
people to be cared for in age-appropriate settings to have skills based day centers all things that people with disabilities need at times.
As it gives them back a life, in bringing it back to heavenly fire serum that turns the downworlders into "mundane," we see that it is the context in which it is used is important as we see that this is the issue more so than anything else really that people seem to want to use it as an insult and see people as second-class people so in going back to the project that Izzy discovers we see that they don’t have a chose they are taken a random and injected with the serum. We see in the episode that Izzy does say that even prisoners have rights, and she is trying to uncover them as well.
So we see that they can accept this and that they have
rights and seeing that they have rights we start to see that this is the start
of the changing of the guard around the thinking of down worlders, given that
the Shadowhunters don’t know their history we see that that the down worlders
know the shadow hunters history better than most and we see that there is a
need for people to know their history and understand it so they can stop things
from happening again to them.
We also see that people can educate the shadow hunters
about what happened to them is happening again and that we seek to understand
it as well to seek understanding is a good thing to look at history we can
learn from it as we see that people need to be aware that they can be able to
understand what history means to them and how to understand this history as
well.
This history is the uprising and this information was
suppressed so people can’t seem to get it
back as the people involved in it repented and accepted their fates and
we see that people want to prevent it from happening again and to understand
what is going on and how to accept it as well as we see that this could be an
issue as education about how people where involved is often the way to accept
what is happening in their lives as well or to understand how they could have
got swept up in it so we need to seek out the mindset of the older generations
that where involved in the uprising so I have looked at Maryse and her role as
she saw that the clave wasn’t willing to see that it was happening again and in
the bane chronicles we see that she was actually involved in the uprising and
knowing that Magnus tried to prevent it by having a safe house we see how that
would make the fact that he becomes Alec’s husband all the more
complex as we see that she comes to accept the relationship and understand it
in a way that only a mother could be we see that the reputation preceded both
of them and we start to see that the Down worlders stick together to protect
each other and to prevent things like this from happening to them.
So, by demanding the change we see that they can have some self-determination
in their lives however we see that they are experimenting on prisoners, and
they don’t know what is happening to them.
This is very similar to what we call a lack of informed consent. [1]So
informed consent in which a person is told about the risks and benefits of any
decision they are about to make is mostly used in the context of medical and
legal practices and often is found lacking in people with a disability where
doctors are using discretion to treat the patient without them fully
understating why and this can lead to what people can call, in political terms
medical burn out. [ii]
As often access to care programs really of a diagnosis of a condition and often
the conditions can’t be named so the person needs to rely on family and friends for care and this can
create lasting issues as well as we see that this can be traumatic for the
person as we see that it is trying to get diagnosed to get help and often in
countries that don’t have universal health care people can end up relying on crowdsourcing or charities to pay off the medical bills or have to work and make these
conditions worse [iii]
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