Posts

Passive support and the risks with having only passive support

  What is passive support and how does it create risks in the NDIS, so passive support is as complex as active support but it is more of a hands-off approach so it is person-centered in a way that there is a minimum direction in what people are being given when they are paying for the support it often happens in people who are higher functioning and are capable of making their own decisions but need support in a practical sense.   So this is practical support, in activities of daily living and we see that if a support worker makes assumptions, we see that this is where the risk of passive support comes in and there are times when it is very appropriate in a person with a disability. However, when a support worker is too hands-off we can see it leading to situations if the support worker isn’t fully aware of their client's disabilities it can lead to situations that can lead to the potential for harm so this is where it needs to be balanced with support and this is a very hard b

What is Active support and how does it help prevent harm in the NDIS

  What is Active support and how does it help people with a disability,   so active support is where the person's abilities are at the core of the support so it’s a level of support where the person with a disability and not their care team is involved in their support and make the major decisions around what they do day to day.  We see that this is the flip side to something that I talked about called Passive support that can cause harm in a person with a disability and we see that harm in support is a topic that isn’t often talked about and often people with a disability are gaslighted into believing that what the provider is giving them is what they wanted. It might be what they need but given the nature of support work a support worker needs to know the person well to provide good support and when it’s app apart to provider active support vs passive support as both are needed but passive support carries the risk of deskilling a person leading to maladaptive coping behaviors t

Active harm vs passive harm in disablity

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Why passive support leads to harm in disability support. So this is going to be a really hard topic to address but it needs addressing and this is because a lot of service providers don’t really understand the potential for harm in having passive support, so there are generally two forms of support one being passive support and the other being active and passive support is when a support worker does things for the client and this leads them to have fewer skills, this can be due to several things and this is quite interesting because one major one is a lack of training of the support worker and a lack of ongoing professional development training and we see that this can be a massive issue because there is no set requirement for a direct support worker to have and this, as I have stated in other formats, can be both a good and a bad thing because people need to be flexible in how they receive care.   In some cases where a person has very complex needs the support worker would be doin

The difference between a disability and an excuse let's start the discussion.

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This post and the video are going to generate some heat but it’s something that needs to be talked about we see that this is something that not a lot of people get as well that there is a major able-bodied disability but I am talking when it is obvious to the person that they are capable of doing things for themselves but don’t have the motivation to do it for themselves or they want to do it but they get angry when people suggest that they could do it for themselves.  Or they get angry when people call them out on it and this is where we need to define what is the difference between a disability and an excuse and what can we do about it as a disability is something where people do need help and they can be helped and accept that help but when they aren’t able to accept that help or see that they can do it for themselves we see that people are aware of it and don’t often want to be able to be helped or they get angry because they are used to being excused. After all, they have a disabi

You a not a burden

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This is something that I have had in draft form for a while but it needs to be said and that you are not a burden as we see that in coming up to Christmas we will have well meaning but uninformed people talking to us about life and asking us when we are getting a Job, going back to study or moving out of home.  Also l feel that this time of year for a lot of people brings a lot of stress so we need to say to people you are not a burden and  if you look at the volunteer hours if you had to pay someone what people with disabilities do their would be a massive economic burden to this and often people with disability’s do this for free, or for under the award wages. We also see that people are talking about what is in the news and often this is the NDIS and we see that this is a whole other issue due to the fact that people see it as a  cost blow out and don’t really understand that it is a complex program and often it’s not the clients that are defrauding the system it is the provider

Support organization's and office culture part three

  So this is a continuation of my series on disability support services and office culture and ethics and I am hoping in this post to answer some of the questions I asked in the previous posts about the services and support people how do you manage this to make sure they are effective, well-trained and right for the person using the service and how do you spot if the company has a good ethical framework that is apart from the thinking about disability as a moral failing.  As if the disability is thought about as a form of morality does this then give the service providers the right to take a medical model approach to disability what type of framework is this mindset working from and how is it a good framework to work with who does it help the service provider or the person they are supposed to support?  This is a dangerously outdated model of care and it states at its core that disability is something to be ashamed of and therefore you need to be cured to be of worth to society.    H

Disability support organizations and office culture part two

  Disclaimer – That these are my own lived experiences and understanding from the research that  I do around the NDIS and health-related topics please be aware that it is informational only and not to be used as a substitute for professional advice or working with a Planner, Disability Advocacy service or talking to your Medical and Allied Health team.      So this is a continuation of disability and ethics in disability service providers, I found that I needed to go back and seek out the very basics around this to educate myself on this as well.   As, unfortunately, ethics can be a tricky subject when it comes to disability because personal ethics play a role as well, and personal ethics vary from person to person and the training from disability service providers varies from person to person and organization to organization as well as having a good framework that they work from.   A good ethical framework is one that everyone from the boss down is aware of and works within and is rev

Company culture and the NDIS

Disclaimer – That these are my own lived experiences and understanding from the research that  I do around the NDIS and health-related topics please be aware that it is informational only and not to be used as a substitute for professional advice or working with a Planner, Disability Advocacy service or talking to your Medical and Allied Health team.    So this is going to be an interesting one to write as I expect a lot of pushback from this post and we see that people need to be very aware of this when choosing a support provider or support worker, so anything around disability-related supports.  Disability-related support is a very tricky topic but in Australia, this is defined as support to help a person live a more ordinary life despite having a disability.   In   Australia, we have the NDIS ( the National disability insurance scheme [i] )   and it is a scheme that helps people with a disability to live their best life. However, it has spored a new industry company culture c

Ecco park a review episode 8.

Ecco park is an interesting episode to end on and I admit that I did skip a few episodes that are mostly marking for other podcasts but it really does make you think this series as it is set in a world that we are approaching very closely and to me is very reminiscing of disability intuitions for the clones they where prepared for the outside world but at the same time they weren’t and it is where we see a lot of what if questions start to arise.   https://open.spotify.com/show/5kPqdtwaSB6wj7QJhg4IdJ?si=0cf89988850d41b0   These questions are what is ethical to do how is it ok to choose your children if you could, and what would you do if you could take over another person’s life and get away with it? Where does addiction come from, and how to deal with it, it is a thriller in the fact that we see it could be very easily happening with IVF babies and the increased screening for genetic defects and potential disabilities, and around the right to life movement, and we see   a very

Mangus and the Box part one

So I am still in the process of unpacking Mangus from Shadow hunters as he is a very different character in the books, movie, and tv adaptions and we see that in the TV adaptations this was due to copyright issues and licensing to use content from the books as well as rating issues as we really can’t have Magnus an 800-year-old warlock dating a 16-year-old shadow hunter so it made sense to make sure that they aged up the characters and Harry Shum jr will always be my Magnus. I have only watched certain bits of the movie so we need to be aware of this but I see that Mangus is very open but very private at the same time I talked about the box before and how it contains memories of past lovers and we see that this becomes an issue for Alec as it reminds him that he will die and Mangus will not and this is very difficult to accept, and it is very similar to when people with disability’s use things that aren’t considered to be “age-appropriate,” but it needs appropriate to their needs suc