Annie in wonderland

  This is something that I need to write for accountability, so I have due to some personal reasons and some with changes in care staff have got out of a routine and have let bad habits creep drinking excess caffeine (though I have discovered that name-brand coke soft drink does give me some level of pain relief, from nerve pain) These things being. Binge eating at night. Not keeping up with housework Not having a good solid routine Not exercising enough to be able to keep excess weight off I am not talking to support workers when things are getting to me Not keeping up with my specialist appointments Not keeping up with friends Being over-tired due to having too much screen time Not keeping up with my physiotherapy Not understanding the role of support workers in my life Not keeping up with the housework I am responsible for and accountable for – washing and ironing clothes and keeping an accurate shopping list, Not keeping to a reasonable budget and allowing m

 This is going to be a short and sweet post and a post that I wanted to do and it is because people are starting to see support workers as not something to be ashamed of but they starting to be seen as a normal thing that people with a disability that have access to the NDIS might choose to use there are several forms of support and this is where things get complex. One is housing so this is mainly Sil housing ( supported independent living)  that has been established by a support provider and this depends on the person's needs and funding ratios, this is where ratios of support come in so this could be that you are either a 1:3 so that being one support worker to three clients, or a 1:2 or needing around the clock care being a 1:1 so this being one person to one support worker but in a housing situation its very rare.  I don’t like the term parents as we are the main character in our lives and not just a participant this is why I use client I know in some international governmen

 This seems to be a topic I constantly come back to as it is the backbone of the NDIS, and I am updating the blog as I learn more about support and I am not learning about it from a book or other “academic” sources. I am living it. So I am judging it by my own lived experience and this seems to be a good thing due to the fact that there is a definite difference between good and bad support and to go even further good and bad support workers. To put it in perspective basically those who understand the assignment at a deep level and for those who it is just a job, I see that some people have a unique combination of both of these, being that they understand the job is more than taking people out for coffees and are able to bog in and get the hard yards done so getting the house work done, getting a person into a good routine, keeping them in touch with family, friends and helping them to navigate these relationships with others and in a respectful ways. We also see that the general po

  So, I debated long and hard this post about writing due to the people involved and we are still dealing with the fallout, but I will do my best to censor myself and not throw myself under the bus. The first thing I need to say is that I am no angel and get tired of advocating for myself.   In the same organization. Most people who have disabilities that are in the higher functioning range are sick of hearing it, and sick of telling support workers what they need, or even being dictated to by agencies, But what happens when a support worker abuses their power and this happens more than you would think to the point that there is a term for it due to the prevalence, Its called being care resistant and it means that everyone when the client finally accepts care they have to do extra work to gain the clients trust due to the fact that they can’t trust the very people who are supposed to care for them. [i] I have on YouTube and on this blog written about being abused by support worke

 So safety does mean different things to different people, for people with a disability there are extra things to think about given that people with a disability are more likely to be the victims of abuse and neglect from the very people who are paid to support them or even family who don’t know how to best support them.  This is a heartbreaking topic to talk about but it is something we need to start talking about because we are in disability pride month and we are still talking about the basics, of disability rights, the basics being, the right to privacy, the right to work, the right to relationships, and the right to freedom of movement, and the right to freedom of expression and the ability to socialize without judgment, but to have advice on healthy and unhealthy relationships. As well as the ability to feel safe in their own home, which could look like living in the family home, living with others in a “normal” share house, or living in disability services accommodation, such

  As I write this, I am going through let’s say an interesting time, and it has led me to question myself, about am I on the right life path and is it ok, to question the authority figures in my life, these being the people who have the power to destroy it. I am not talking about my parents or family at all they in fact are bloody amazing people, but the support workers in my disability services accommodation. There is one lady who I do clash with and the other support workers due to the fact that they have bills to pay can’t say anything at all to her as she is related to management. I had a run in with her and it has led me to question how much power a housing provider should have. I understand that they really need to have some but how much is too much power. Like I can have family over to visit but I can’t have other support organizations in the house due to insurance issues. But I have talked to the NDIS commission, and this is what the very definition of an unapproved restric

  As I write this I am curled up in bed as it is cold and it’s a Saturday afternoon, I in my previous post did talk about manifestation and me not being a nice person and I am realizing that it’s not that I am not nice its just that I can clash with a few people who think that essentially, they can coast, and they are lazy.   I feel that I am fair and balanced in my view of paid support workers but I have had a bad feeling about this support worker from the start so this is what I am going to do to change it, as manifestation doesn’t work when your not willing to put in the work so the first thing is figuring out, if I even want to stay where I am or is it worth the mental and fiscal risk of moving or am I moving from the frying pan into the fire.   As she might be shifted into a more suitable house. I am also studying as well so I am giving myself some skills to be able to earn an income as well, it is online but it’s a marketable skill. But if I was to ask the universe what I wan

  It’s a Saturday morning and I am going to a club I attend, and it is focused on gardening, and I am seeing that it’s an interesting dynamic, of older people and younger people. But what I have noticed is that I am the one constantly reaching out to people.  I was able to gain some needed perspective as well.  I am stepping back for a while to focus on myself and catching up on organizing my home and health as I have had constantly for several months my platelets sky high. (This is my white blood cells that are the packman of the body) I am also studying at the moment and have let myself get very disorganized due to my health. I am also not a very nice person to be around at the moment due to my being in constant pain I have had several bad days and I haven’t been able to access the support I needed. So, I am taking the time to reflect on this as well. However I am realising that I am my own worst enemy and I do at times lash out at the very people who are paid to support me and t

  https://youtube.com/shorts/a9xqJuDpFXw?feature=share     This is the clip that I have been talking about, on my youtube channel,   It seems to me that people feel it’s ok to do this and it is not something that we need to talk about because it seems to be becoming more normal and it’s not ok. It is undermining what the disability community both in real life and on the internet has fought for and this is really undermining it as we see that people need to be very aware of it because it is not ok. When we start to speak up about things like this, we see that people get offended and feel it’s ok to question people who use accommodations, such as disability parking spaces and displaying the right cards, and people feel like they can question it. I see that this may be a bit of a USA-focused problem but it’s not I am seeing that other international creators are faking disabilities for views, and there is something, that people need to be able to be believed, and stop faking for

  So, I must just get this out of my system, and I am seeing why I am not manifesting what I want in my life. The first one is I am not putting in the work, so the meditation to find the blockages in my life as are becoming very apparent to me, and some things I can’t control but others I can, and I am willing to tell you why. In my house (I live in what is called a SIL house, this is short for Supported Independent Living) it’s a type of housing for people with disability but is more for people with mental health needs or like myself psychosocial disabilities. So, people who would otherwise fall between the cracks in support, but we have one support worker that through the virtue of her relationship’s in the company. She is essentially allowed to get away with a lot more and simply feels the need to be the adult in the room and “direct traffic, this is annoying the other support workers as they have had to pick up the slack due to them not being able to speak up to management due to