Annie in wonderland

 So after the findings of the disability royal commission, we see that people are discovering what it means to be disabled in Australia and what the words we are throwing around mean and I discovered in cleaning up my blog and hard drive that I had this video on ablism, and it’s different for every person when they discover that they are disabled or start to identity with that labeled more and more as I realize that I have a TBI and have accepted it but I have only in the past  4 to 5 years accepted that a TBI is a disable and affects my life and the lives of the people around me as well. But what is ableism, it’s basically when people dismiss or invalidate a disability in assuming that most people can do things for themselves, and most people with a disability might have workarounds but some might need a lot of support to do very basic tasks. It heard much more about accessibility, so having places that are accessible is much more than a ramp to get in it’s  ooking at having sign la

    I am writing this on a Saturday, and I am getting used to the weather and changing my routine Given that I can’t drive I am reliant on others to drive me or to have workarounds such as public transport or taxis.   I am also grateful for people who will despite working long days listen to me or take me home or go walking with me as I make the effort to be a better person as I haven’t for a long time been my best self. I have been trying recently to defend my connection with others despite this being a challenge for me to connect with others. I do have a struggle with what is appropriate and what is an excuse vs what is a reason for me to need support and it’s a challenge that I didn’t realize until I started doing some background reading for this post to be aware that it’s a challenge for people, who also live with disabilities and being higher functioning to be able to accept the help.   It reduces the burden on the family as well, it’s just a question of how to use the support y

  So this is a post that I am not even sure will make it to publication but hey sorry there is not a nice way to say it, so I am going to come out and say it and this isn’t an attack as there are some amazing workers out there that do understand the assignment.  Some of you support workers need to go back to school.   A lot of support is basic common sense, don’t overcomplicate it, so some of the really basic things that you should know by the time you graduate high school are and I can’t believe that I am saying this, and some of you young ones need to get off your phone and learn about the reality of the world.   It’s not the LGBTIQ community that is the biggest minority in the world it’s actually people with disabilities and we don’t see the community celebrating our existence, we actually see them complaining about the cost blowout to the NDIS but do you know how many pages the final Royal commission report is? ( that is a whole other blog post.   But let me lay down some facts for

    I have realised I live with a certain low level of constant frustration that is starting to wear me down and it’s entirely my own fault. It to me seems to be a combination of major things coming into my life and some are my fault, but others aren’t, and they are something that I find incredibly wearing and I think that this is not talked about in society. So, I have been very honest and open about living with Chronic pain and the limitations it puts on me as well, but we also do see that there is something else that leads to frustration in people with disabilities lives and this is something weird that we really do need to discuss, it’s a combination of being disconnected from the rest of society. I know that the Royal commission will help with this, but we are seeing a definite normalization of identity and I really do respect that, but I am not seeing as much as a lean towards disability acceptance and we are seeing that people still think it’s ok to talk over us and not to amp

 <script async src="https://pagead2.googlesyndication.com/pagead/js/adsbygoogle.js?client=ca-pub-4981013962895893"      crossorigin="anonymous"></script>   Hey all, I am taking a break from blogging and YouTube at the request of some people close to me. However, I need to say that I will be doing a one-off blog post on the Disability Royal Commission. I feel that we need space to process the outcomes and what is in the report and I feel like other disability advocates are much better qualified to talk about it than me, I am feeling the need to amplify voices that have been in the lead in the Disability Royal Commission, we see that people are still processing it and the larger term changes that it is going to bring. These changes are something that we need to be very much are needed but they need to be balanced with the needs of the larger community and changing attitudes towards people with disabilities, and how we are treated by professionals and the

  Hey all so I am going dark for 6 to 12 months I have said a few things that have really hurt some people in my life and I am going to concentrate on being and doing better I don’t know if I will re- start the blog but I will leave it up for now but there may not be any new content so I will see how things are going if there is something that I need to speak up on.  

Hey, guys so this video was something that came out of a heated discussion with family and close friends as I might have offended them with my What is a disability video that I cross-posted to Facebook and this is one of the major downsides to having ADHD, the impulsivity doesn’t really go away it just gets easier to manage. But we are talking about how vulnerable people with disabilities are we forget to talk about their strengths and what they have overcome. I know that some people don’t like us talking about it but the people who actively put content on the internet and are running blogs, Tic tocs, podcasts, and YouTube accounts well they have lots of skills, and being disabled is just one part of them. So they might have skills that people without disabilities might not understand that they do have that could be of benefit to a boss, to a company, or to a volunteer organization. But what do we define as skills, we need to be able to define them before we go into the deep dive o

    I am taking a break from housework as I am listening to the work of RD Lang he was a very controversial psychiatrist who did something amazing and it has a lasting legacy today and I am just diving into his work. His most famous work is the Kingsley Hall experiment, made famously but the film staring David Tennant called Mad to me normal and we see that what he did was transform psychiatrists from simply medicating people and turning them into zombies to taking them out of their shitty environment generally institutions and giving them dignity and living with them. He when looking through the lens of modern thinking he was really ahead of his time in the fact that he was able to see past the mental illness and see the person, to me and I need to do some more digging I feel that this was the start of person centred   care as we see that people need to be very aware of what is happening in the field of mental health and he didn’t see his clients as “ uncompliant” or drug resistant

  We need to do better. I am writing this as an observation that in Australia we are failing people with disabilities on so many levels and this is not great at all to see and observe.  I saw on the news stream that we on a federal level have a surplus and I understand that this is a good thing but we need to be aware that people need to do better for people with disabilities.  Those of us in the disability community are waiting for the final reports from the disability royal commission and we are still counting the cost the cost is just fiscal it’s the harm that has been caused in people's lives and not only that how many people through the impact’s of not having the care they need or the encouragement they need to be better or to achieve what they are capable of, as we need to be aware that people with a disability as we have seen are at greater risk of harm from the very people supposed to protect them. We are seeing that many disability service providers don’t pass the bu

    So, I am writing in my new home and see that it has been a game changer. There is also something that people, need to see and understand about support, it does depend on the clients, but it also depends on the team in the housing facility. I have realized I am not entitled, I am just simply getting the help I need, and I understand that this is coming from a place of privilege, as I haven’t always used the D word. This word being the word “ Disabled” I didn’t think despite me living with a TBI that I was able to use the word as I was able to work,   I was able to drive but I couldn’t live on my own and I am still not prepared to talk on line about this but I see that people need to be able to use the words that describe them without fear, these being Disabled and High functioning as I am Disabled but at the same time I am high functioning. It's not offensive to tell the truth about what I am it’s not what identify with it what I am, and if this offends you I would question