Annie in wonderland

    I saw this on Facebook overnight as I suffer from what is [i] called Peripheral neuropathy and we can’t figure out where it came from and how to stop it, but it is nerve damage and it gets worse at night because there isn’t a lot I can do to stop it, I have tried medications but I am sad to say their side effects where worse than the pain itself. I manage it but some really basic means, a good diet, exercise, and at times forcing myself out of the house, to do things that I don’t want to do, basically being an adult and not over-relying on support workers, but it’s a really common question, that we need to start answering. The question   What can I do with my NDIS funding besides getting a support worker we are all starting to understand what a support worker can and can’t do the options for employing one and the housing options and providers are starting to move to be compliant with what the commission has said about, Housing, Food and providing the basics of life, and the us

 This is the first thing we need to know is what is an ordinary life as we have content creators and YouTubers as a legitimate career option these days, we are also seeing that lives are mostly lived online and people who choose to on their weekends go hiking, canoeing or fishing are called extreme, I know that there is such a thing as extreme hiking where you go long distances with very little prep and the city version is to go urban exploring ( generally at night or in abandoned palaces to find interesting things. In Australia we don’t have much scope for extreme hiking due to the heat and cold but long distance is definitely a thing, but we then get to what is an ordinary life when it comes to disability and this is straight from the NDIS website, about life more ordinary,  and how they use it to decide support’s and this then goes into we need to know what is a disability. “An ordinary life is a life where you have the same opportunities as people without a disability. An ordin

 So Let’s unpack what I am saying here it’s not that Choose and control in disability support doesn’t exist at all, as it does but at times depending on where you are located it can be a bit of a myth around what you can do, as for some people having absolutely no limits placed on them can be dangerous even for people without disabilities. Some of the restrictions can be because of a couple of reasons and they can be as simple as behaviours of concern, a lack of impulse control, or the lack of cognitive awareness to be able to understand that their actions have consequences, and this leads to where restrictions as are needed to be put in place. But when it comes to disability accommodations it can get complex to get into the system simply, and even in a rural, regional, and remote area, there aren’t the disability accommodations that we know in other areas. So, to get into the system you need to take what is out there and this can be challenging as you might get the care you need h

 When I saw this clip, I was like this must be a setup but know it was a real reaction and I know that I am hypersensitive at times as well, and entitled, but to say that people who use wheelchairs aren’t paralyzed is just plain wrong and uneducated about disability. Both Strollers and Wheelchairs are mobility aids, and they are a tool. We see in the Clip that the person is suffering from a valid health condition known as obesity, but I am fairly sure that she would be a part of the body positivity movement, this body positivity denies one fact, that  health isn’t health at any size, you can be thin and very unhealthy as I was for many years, but to be obese we need to point out some difficult and challenging facts that there is a higher risk of, Heart disease Stroke Sleep apnoea High blood pressure Depression These are just a few and it’s not healthy to be obese at all, a little overweight in case you get sick I got told by my own health professional that it’s actually b

This is going to be a hard one to write about and I am not sure if I should post it to the media blog or the main one. Still, I will post to both, and I have to admit I haven’t been able to finish the film but I have been watching the David Tennant movie Recovery and it’s on Tubi if you want to watch it legally. But you can also find it online as well. It is a well-done movie and it is a very accurate portrayal of a brain injury. It tells the story of   Allen head of a construction firm that suffers a traumatic brain injury and I have to say that its portrayal is accurate as it not only focuses on him as a brain injury survivor but also the family trying to accept that the person that they knew is gone and that there is a different person in place and the frustration of a person who “ present’s” as able-bodied but isn’t and has what we now know as a hidden disability as we don’t say invisible as this means that it may not be their, but hidden well it’s simply hidden from public view.

 So, this is a quick post to talk about Support workers, and the options you have. There is several options that we see are open to you to keep working in disability support. The first one is to stay a direct support worker, and being happy with it as many people are, but if you are unhappy with an agency there is several options to work around it.  The first one is really challenging is to stand up to the agency and to try to change it from the inside in, their also may be some situations where it’s a legal requirement  to report to the commission, things like unsafe practices, or restrictive practices used without the proper support and documentation, and processes and being used as a first line instead of a last resort, there is other options but we need to be aware that they are their for a reason and need to be updated not just eliminated. The second one is to find a new agency but this can be fraught with danger as in small towns it may not be an option to go to other agencies

 This video I can see I recorded a while back but it is still very relevant today as we do and don’t talk about consent in disability.  Some people will never be capable of having a romantic relationship or being able to hold down a normal job.  But we don’t talk about it as we don’t think it’s a needed conversation to have in some case but in some it’s very needed so this is going to go into where we need to be having conversations around consent and relationships, in disability as there if a person receives care is going to be conversations that they need to have that are difficult and challenging, and consent is one of them, and understanding consent for able bodied and neurotypical people I have had conversations with them and it’s tricky for them so we need to respect that for a person with a intellectual disability or a neurodiversity this could be tricker and they want to respect it but may not have the impulse control to be able to control what they  are doing. But others can

    Manifestation Day 4 I did remember to do it before going to sleep and I   have a meditation on my phone. I have found some on YouTube but there are plenty of Manifestation Meditations on Youtube, Spotify, or other audio apps.   I am finding that I am hitting a wall on this day due to my thinking not being clear. I don’t know if that is due to some things in my personal life that I am learning the hard way to keep private, but I am trying to manifest some things that I am willing to work towards,   and these I realize aren’t “ disability” things but they are   “ life development things.”   So I am trying to manifest a wider friendship circle, and deepening existing friendships through groups I attend, and leaving groups that no longer serve me. I am trying to heal some relationships that I won’t go into but I have realized that all relationships take work and sometimes that work is easy and sometimes it’s hard. I am also working towards not being entitled as well, this is a hard

    Let’s call this Day two for manifestation and I am working on believing in it, but I did forget for a couple of days. But as I have said before at the end of the day it’s a meditation and it helps me to relax, and to rest as I haven’t been the best version of myself. But this is helping me to be a better person and to not avoid difficult things, like getting organized I am seeing that there are some fundamental truths in my life that I won’t go into, but I have discovered that I have an avoidant personality, so I am looking at this and working with a mental health professional. I also seem to get paranoid and regularly implode my life and this isn’t great to do but I am starting to look after my physical and mental health such as walking and getting my ds appointments under control. I am trying to manifest a life where I have better relations in my personal life and where I am not avoiding my feelings, by really working on it to be able to get my life back on track, and this is

    I forgot to do the meditation last night, but I am noticing that even with the one I am actively looking for options and getting over what I could consider a pity party and I am using the tools and programs that are open to me to work towards my goals and to set aside what goals are unachievable to me due to my disabilities or illness. But I know that I just need to work harder and that also means asking for help becoming more resilient and not “wasting time” on the internet and making excuses. But I am noticing that I am starting to go after my goals and work to get my health back and that is including my mental and physical health, and this is including facing things that I don’t want to face such as conflict, but I am reaching out to people in my personal life to have friends that are a diverse network. I am also going to look at the mission drift on the blogs and YouTube and look at whether they are even worth the heartache of continuing. Please let me know if it is worth