Annie in wonderland

Disclaimer – That these are my own lived experiences and understanding from the research that  I do around the NDIS and health-related topics please be aware that it is informational only and not to be used as a substitute for professional advice or working with a Planner, Disability Advocacy service or talking to your Medical and Allied Health team.    So this was such an interesting video to record and to watch the reactions to it as it seems to have resonated with so many people. In different ways but to tell the story behind this video we see that we need to know the characters that I am referring to,  The White Saviour friend  -   It is someone who wants to save you from a terrible fate, being disabled or living with a chronic illness. and I know that I am borrowing this term from indigenous peoples experience's with  c olonization  and from people who have been historically and systemically oppressed due to popular thinking leading to segregation and separation from the rest

So this has been an interesting post and video to work on because I had to look at my own relationships and that I am lucky to have a supportive family and this is something that sadly some people with disabilities don't have. However, we need to remember that we don't always have the full context of what the history is we see that sometimes we see what people need to have boundaries and this is where we need to understand that having a disability isn't an excuse to be mean, we all have different levels of understanding of relationships and how they work. We also need to consider the decision-making capacity of the person as there can often be a gap between their physical age and their emotional age and this also needs to be considered when we see if they can maintain relationships and in this, I am talking about friendships as well as the potential for romantic relationships as well as with support workers and other professionals. We also need to be aware that there may be

Disclaimer – That these are my own lived experiences and understanding from the research that  I do around the NDIS and health-related topics please be aware that it is informational only and not to be used as a substitute for professional advice or working with a Planner, Disability Advocacy service or talking to your Medical and Allied Health team.   So I am taking the time to do a deeper dive into what is duty of care and in doing this we need to look at what the words are before we even look at where the phrase is applied and how it works in a practical sense, and I will be focusing on a disability perspective. Duty as defined by [i] the Merriam- Webster dictionary is defined as : :   obligatory  tasks, conduct, service, or functions that arise from one's position (as in life or in a group)   CHARGE ,  SUPERVISION left the house in his  care especially   :  responsibility for or attention to health, well-being, and safety under a doctor's  care   So these come

  What is person-centred care in the disability approach?   So we need to start out by saying that there is several approaches to disability care and they have very different world views attached to them, the first one is the medical model of disability that says that we are broken and that we should be cured and that then we can contribute to the world. The second one is the social model of disability which says that it is the society that disables us and that we need to be aware of this and that by fixing some things in society the disability will have less impact and it also makes people aware that disability isn’t something to be feared it is just a way of being, and that disability impacts people in very different ways as well. So this is where the person-centered approach comes from and we see that this is an offshoot of the social model of disability and that this is where we see that it is fundamentally different in peoples view’s in that if the person has a care worker (

So this is going to focus on Magnus from the TV and book series shadow hunters, So as we are aware Mangus is a Warlock and the warlocks are immortal downworlders, the world is quite brutal world expands as there are Shadowhunters that are born to hunt demons and to help protect the world from demons and they live in what they call the shadow world and this world is quite a brutal world and even though it does have it’s own rules of engagement and equivalent to the Geneva convention, and human rights, the accords and we see that Magnus was at the signing of the accords and have seen things change over the centuries of both Shadowhunters and mundane attitudes towards down worlders or classes and the shadow hunters seem to follow this trend.  And there are a lot of differences between the shadow hunters and the down worlders but there is also a loss of relics that belong in this world.    Some through design and some through war and age, as we see in the books that there is a whole line o

  Image by  Sasin Tipchai  from  Pixabay   So this is going to be a great blog post to write and I see it as a great win so what is good and bad support this is an interesting topic to get into in a way as it can be quite subjective what is good and bad support as there is a difference between active and passive support and the classifications of support workers as well. So support workers are there to support you to achieve your goals and we see that this can be quite a difficult thing as you need to be aware of some things about a support worker first, the first thing is that they are paid people, so they are paid to support you, and this means that they don’t have to do things for you.   They are not servants, maids, or your mother, and this is a difficult thing to be aware of as well.   Even when an organization says they are person-centered we need to remember that they are running a business and that this is why they have scheduled support times this is a good thing as it means

  What is the digital divide and how is it relevant in disability care? I So let’s start by breaking down what is the digital divide, it is basically those who have access to stable, internet that isn’t blocked by the state or other bad faith actors.   However we do see that people need to be able to afford to pay for the service and this can be another issue if you can’t access the internet then how do you, do most things that people do online these days? Like job searching, like watching streaming services or on-demand TV, we see that this is distinctly different from those who for ethical, health, or religious reasons have chosen to go screen-free In saying that we see that in being screen-free in their home they might have access to screens through other places like their work or public libraries, They understand what is a conscious decision and they can work around it.   However, what I am talking about is those who don’t have a choice in the matter because they can’t affo

 When I started this blog I had a lot going on in my life I had to move back into the family home, and this caused stress that I didn't even realize until now.  However, I did rebuild my life with the help of my family, friends, and support workers under the NDIS. However, I want to do this post as a warning to others to not get into the situation that I did and to understand to "trust," the NDIS system as when it works it works really well.  However I see that when the system doesn't work it really doesn't work well for people and we see that this can be a massive issue as well and one of the core reasons I started the blog as I would like to be a disability advocate but we see that this is a space with lots of diversity as people with disabilities that are very diverse as well, so  I am not sure how to get change happening but I can use my talents and write and raise awareness there as well. I want to be able to change people's minds around the concept that

This is something that I have been aware of for a while but disabilities that are caused by health conditions are something that we need to talk about, and we don’t know what people are aware of as well.   As being disabled is expensive due to needing to go to specialists and generally not working so having to cut back on things the first and easiest thing to cut back on is entertainment and this for a young person puts them at risk of social isolation further and really does impact their disability further as it serves to isolate them further as well. We see that this can be a massive issue and can have a massive impact on mental health issues as well, and we see that people are not able to socialize due to not having the funds to do things, there is a term for it in people without disabilities it is called city life syndrome and we see that this is at times amplified in people with disabilities as well, so the impact of the physical disability I know that there are other creators

 This is a hard one to talk about because the internet and googling have saved many a disabled person at the hands of a time-poor doctor and they have been able to self-medicate but this is the issue that in doing this you might actually cause yourself or another person harm by doing this.  There has been an explosion of people gaining access to medications through googling and getting access to medications that are meant for others' medical condition the big two I can think of is people gaining ADHD medications for study drugs and people using some types of insulin for weight loss when you don't have diabetes or another condition that causes weight gain.  So you make it harder for yourself to have good health care by not trusting doctors or by pushing the doctors to make a diagnosis so you can get what you want, it harms everyone and this isn't a good thing in a way that we see that people want to help themselves but we see that if you are saying things like everyone is a