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Support work a clients perspective

  So, I am hard on care workers and people who don’t know me may say a little two hard, but this comes from a place where I have had the good the bad, the ugly and criminal in support. I didn’t always have support or even identify as disabled and that is due to my amazing family and parents. I knew I was different but to me disabled was the kids in the wheelchairs that you only saw at the show or at the events put on for them, now I am attending them, they aren’t just for high support needs but for everyone with a disability and so much about what we know about disability has changed, and we now have much more education around disability and what it means to be disabled and that is a good thing. We also have the NDIS that meant care went from being highly specialized needing high level skills to just needing a ceritifcate 3 in support, basically if you could cook, clean, drive a car and learn you could do the job and that is amazing as there are many highly skilled young support wo
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A support worker PSA rant.

  Ok let’s talk and this is something that I need to get off my chest that some of you in the care industry shouldn’t be hear. I want to talk about something that happened this morning and the impact it had on me to the point I just collapsed crying outside, I finally have the courage to say what I need to say and that is that low support needs doesn’t mean no support needs. It means a lower level of support is needed. I know that I am an adult and able to cope with big girl tasks but when asking for help its your fucking job, is it that hard when I ask for help to do your fucking job, I waited 2hr and I just realised no one is coming to save me I am in a sil house ( basically a group home for people with disabilities for readers outside Aust and I   have realised no one besides my family is coming to help. Even when they are paid and its there fucking job, but there are some exceptions of staff in the house but generally I have realised I don’t ask for help because the other staff
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A stich in nine saves time a disablity perspective.

  This is amazing how a little bit of attention before things get out of hand is amazing how a little bit of attention in doing something difficult in sending an email to the head office of my housing facility has saved a whole lot of drama down the line. I realise in writing this that we need to take a few steps back, so I have been living with a few things in my housing facility that I say aren’t ok and I have just lived above them but now it’s   was time to speak up. One being a neighbour that has complex and challenging behaviour’s of concern, and has extreme mental health issues that we are working with and I have compassion and understanding as she isn’t attached to reality and its something that we all understand but I feel and the support staff feel at times some is attention seeking and not mental health. I discovered that a few support workers are going to need to do a massive please explain in that they are on the dot of time or running late and not just the odd occasi
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Situational awareness in support and care

 Hey all so I put this on my stub stack but it's to important to forget about given that it's something that we really do need education and training on in support and a  refresher around how important it is to have boundaries and situational awareness to prevent harm in both sides as harm prevention is so much better that harm minimization and how do you do that is by having situational awareness and boundaries and its not hard to do respectfully when you have confidence in yourself and what you're doing but this is where people seem to go wrong around support and the role of a support worker in what they are able to do and there is so much of a grey area as well that one of the most dangerous phrases in support is to say, That's not my job or I will leave that for the others. This just leads to resentment in the care team and the person not getting the care the need, and that is why it's the most dangerous phrase in support.  I have posted over on Tic toc about su
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A new chapter

  I am safe was the words I uttered just now at 7.30 pm at night I don’t need to climb into bed and hide anymore. I am safe I   can be myself and not mask, I am getting the help I need I don’t know if it’s the open letter, or surrendering to my circumstances that I can’t change and asking for help in ways that I don’t expect. I still have all the usual bugbears but I finally feel safe in my home despite having a new support worker starting we see that this is normally a huge deal for me but we are seeing that people are more open to me and willing to help, I live in the lap of luxury but having people willing to help is amazing and working with me, not against me, is going to do my health wonders. So I am grateful for the good people who work in this industry and can help change lives I went from independent to the family home through the mess that was the COVID lockdowns, medication misadventures, and seizures but now I am in this wonderful Sil house (supported independent accommo
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An open letter to support staff,

  An open letter to support staff and I want to say that this is not all support staff and care givers but I have to express this frustration that isn't just mine alone it is at boiling point when we have asked for change and the only way to get it is to wear the labels with pride, dignity and to not give up the fight.  If your having a negative reaction to this letter I would ask you to open your mind and heart and question why, as this is my lived experence of having " well trained expert,"s caring for me in my own home.    Dear Support Staff I understand that this is your job and I am your responsibility, but can I tell you my side of the story and why in your words I don’t “engage,” It is on your terms because of a myriad of reasons that I can understand yet when I speak up, directly to staff I am considered the problem, I live to hear and yet I am needing to put up with clients you favor when I am needing help. You seem to have no situational awareness to how lou
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How to survive a horror movie ( satire ) not real advice

  How to survive a horror movie   This post started out as a dare from my housemates as on a Saturday afternoon when cleaning is done we watch whatever B roll strait to tv movie is on and we have worked out how to survive a horror movie, so this is a list of how to get out alive and I write it as a joke but well aware that some of these we teach young women to stay alive.   However these are intended as a joke and fun at the horror movie genre General tips ·        Be situationally aware don’t park in dark spots. ·        Don’t go following the stranger that is following you. ·        Don’t sit in your car alone lock the doors and drive off. ·        Drive straight to your location don’t take the dark detour. ·        Don’t talk on your mobile while walking home in the dark ·        Don’t go to the second location if offered freedom. ·        Don’t answer the baby cry it’s a trap call the cops. ·        Keep your hair tied back it could become a hazard or a weapon.
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The Ableism Trap: Manifesting Away Disabilities, Ignoring Systemic Failures

  Picture this: you're stuck in a system that's supposed to support you, but all it does is fall short at every turn. Your needs aren't being met, your voice isn't being heard, and the frustration is building with each passing day. Enter manifesting – the latest trend in self-care – offering a tantalizing escape route from your troubles. But here's the catch: your troubles aren't just going to vanish into thin air. They're deeply rooted in systemic failures, conveniently overlooked by the glittery facade of manifesting. Let's shine a light on the elephant in the room: NDIS agencies. These are supposed to be the lifelines for people with disabilities, providing essential support and services to improve their quality of life. But what happens when these agencies fail to deliver? What happens when the funding dries up, leaving clients stranded in a sea of unmet needs? For many, manifesting someone out of their life isn't just about convenience – it'
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The internet and consent, a wider discussion we need to have.

    Hey so this is a really random post but one that ties into a wider discussion I think we as a society need to have around consent, and     the internet being forever. I have learnt that the hard way, but I am currently working on some other blog posts and I came across a screen shot of David tenant on Tumblr and it looked recent and it was from his wife’s Instagram ( David doesn’t do social media but is aware of it.) But I saw that they zeroed in on his foot where being pride boots, and then immediately    started speculating on his sexual preferences, as they have been doing for a couple of years since Good Omens has come out, and I am not saying I have anything against his preferences and his marriage but I started digging into his wife’s Instagram account and I saw in most of the posts that he was in and I might be totally wrong he looked scared or annoyed and there are some very recent ones that seem    to be quite invade and that she was filming without his knowledge, and I do
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What I want to say to Tumbr fan girls that slam me but can't

      Some of you have never worked with high-profile people or in the arts and it dam well shows. How can I say that you have never worked in the art, or with high-profile people, because people don’t know the technical terms, that are commonly used in the industry some of you are trying to use them but we are seeing that people don’t want to use it, in the correct terms? So, an important thing to remember is that you are only seeing what an actor or content creator wants you to see and that there is something called fan service. You also see that people, see that people need to be able to understand what is happening with premieres and press nights they might be flirting but again we see what they want us to see and that is a part of their work and it’s a very noisy environment, and that is why people need to be looking at people’s lips. Using the terms out of context is not great and it shows that you’re interested but not interested in learning the correct terms, One take doesn’t m
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