Annie in wonderland

  I am going to be doing a very deep dive hear but I know that people want to talk about the NDIS and what is wrong with it but we are getting side tracked by the fact that people who aren’t in disability circles or don’t know anyone who receives support, don’t know how complicated it is to get onto any type of care scheme that is offered in commonwealth countries, and even then the level of support you get can be questionable, and for me I present as very high functioning because I am until I get fatigued or tired and then I need to be able to ask for support and I have a very hard time doing this but this bring me to introducing what I am going to be talking about and it something that is very hard and complex to explain, that is restrictive   practices and in a very broad sense they can fall into two categories, Approved restrictive   practices and unapproved restrictive   practices,   these are practices that are generally outdated and as evident in the name used without approval f

So as I write this I am  upstairs in the new unit and it’s something that I didn’t feel safe to do in my other unit unless there was a support worker, in this house there is a support worker most of the time and I have much better access to support and they are much better suited to my needs and my team from the other house, has started to move with me but it’s a really difficult topic to talk about due to the fact that so many support workers come into the job with great intentions, but when the reality hits of people with what is called behaviour’s of concern we see that people need to be very aware of this and that the behaviour’s can be extreme to the point that no organization will take them on or they need to employ a private worker, but we see that this is a massive issue at the moment.  Due to people not understanding “hidden disabilities” these being Autism, brain injuries, ADHD, and mental health issues and you physical health can effect your mental health, so if you don’

  Hey guys so I will be going dark for a while as I move and I wanted to talk about respect in disability and this is something that with several agencies I have found that Respect is a massive thing for support workers and respect is demanded from clients but not demanded from the office staff as they seem to be so disconnected that people don’t understand what is happening until they are under the impression that they are in trouble and when someone gets to the bottom of it we see that people aren’t told what is happening so how can they plan and have a stable life, I can understand that changes in staff happen and that there is communication break thoughts but we see that people need to be much more aware of the way that big agencies treat people with disabilities, the seem to be a commodity that people don’t want to admit it but I have seen and herd people calling us cash cows and difficult and challenging behind our backs and this isn’t ok as people need to be aware of what is hap

Hi all so I am writing this as a follow up to my ablism video and I know that the first rule of the internet is to stay away from the comment sections but when you get this often used phrase around the only true disability is a bad attitude it comes across as rude and simply ableist as people get very uncomfortable very quickly when you start talking about disability and I have to say that yes at times a bad attitude gets in the way if you have a disability but this comment I know the person had “good intentions” but we know that the road to hell is paved with good intentions and we need to be able to work with what we have but at the same time we need to acknowledge  that disability is very real and there is very real links between disability and mental health due to comments like this one and I do admit that I felt attacked with what was said as I have worked so hard to even admit that I have disability’s and am worthy of help and assistance, we see that people need to be able to und

I am going to be doing a very deep dive hear but I know that people want to talk about the NDIS and what is wrong with it but we are getting side tracked by the fact that people who aren’t in disability circles or don’t know anyone who receives support, don’t know how complicated it is to get onto any type of care scheme that is offered in commonwealth countries, and even then the level of support you get can be questionable, and for me I present as very high functioning because I am until I get fatigued or tired and then I need to be able to ask for support and I have a very hard time doing this but this bring me to introducing what I am going to be talking about and it something that is very hard and complex to explain, that is restrictive  practices and in a very broad sense they can fall into two categories, Approved restrictive  practices and unapproved restrictive  practices,  these are practices that are generally outdated and as evident in the name used without approval from th

  This post is on the back of a few Netflix specials that I have watched and I am starting to transition to less chemicals and preservatives in my life so this requires a little more organization than I was expecting but organization as I am learning isn’t a one off it is a process and I am also learning that for me being blessed to have access to support workers ( care givers to the USA readers) I am then able to ask them for help.   But one of the things that I am realizing is that natural doesn’t equal safe all the time I am watching, unwell about the wellness industry and we need to be able to think critically about this industry as if you put industry after a word you need to ask what are they selling and for me, I am an amazon associate and I am honest about it as well but I do state that I am not a medical professional and to check   if it’s ok for you. But I am starting to go over to natural washing up and cleaning tools as I am going though my existing stash of cleaning

This is something that I have wanted to write about for a very long time but really haven’t had the guts to write about it and I know that I bang on about people with disabilities being abused and this is true, but we also need to talk about the flip side of this being, that Support workers do get abused at work as well. I need to put a really important point in here as well that have emotions and I have blowen up at support workers in that past but what is important is how you handle it and what is considered abuse differs from person to person but from a legal perspective it can fall into a couple of different areas.   I have taken this from Safe work Australia, and it also documents that home care workers are in a higher risk of abuse. W orkplace violence and aggression can be:  ·        physical assault – such as biting, scratching, hitting, kicking, pushing, grabbing, and throwing objects.     ·        coughing or spitting on someone on purpose  ·        sexual assault

  https://spotifyanchor-web.app.link/e/6dAmalcTDCb   Hi all so this is day two of getting my health back and that includes connecting with others that is a massive thing for me as I have massive trust issues so I am learning how to trust others and to ask for help but I am also walking a very fine line of is it simply asking for support or is it, entitled behaviors. As in getting my health back the one thing I forgot was my mental health, and that is really important to me as a person with a disability what we could consider self-care others could consider entitled, but it’s a delicate dance of is it entitled or is it a person's reactions to boundaries and this is a really interesting thing to consider, as sometimes when you get the support you need, I have seen a couple of “ interesting” reactions. These are all from my nuclear family from my wider family it’s seen as taking pressure on my family and this is kind of weird because my family feels “put out” by the fact that th

    So last night I watched the Netflix documentary Poisoned and I think I need to start out by saying something really important. I am located in Australia and we don’t have the food production monopolies and lobbyists that the USA does but it got me thinking on another random tangent, that is cleaning, don’t get me wrong we need to be on top of where our food comes from and I am going to start making major changes in my life around my diet and start making some documentation around it as I know diet is a major player in having auto immune diseases go into essential remission, before having to go onto very heavy medications that are used in cancer. But I as I do went down an adjacent rabbit hole and still haven’t reached the proverbial warren, that is food safety at home and adjacent to that cleaning as you can have a tidy home that is not clean and I know, as I have been that person and I admit we all get busy and we all need to work and families can’t have one person at home to ju

 I am studying at the moment but saw a post from a disabled creator on this platform talking about internalised ableism and I get that is a thing, as I know that I have it most of the time but where do we start to draw the line and say that we aren’t responsible for educating everyone we meet about our disability and that there is sometimes for hidden or physical disabilities a time to meet society’s expectations, for what we are about to do. We can’t expect the world to change for us when we aren’t willing to put in the work  and I know that this opinion will cop a lot of backlash but we need to be accountable to the best of our abilities and acknowledge how far we have come and we need to be thank full for what we have as we have more than the people who came before us and fought for us to have equal access and are still fighting for equal access, but what I don’t agree with is equity as this removes all the learning opposites and provides a space for learnt dependence and this can