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The NDIS Tightrope: Juggling Ratios, Unwanted Guests, and Damaging Masking

  Title: The NDIS Tightrope: Juggling Ratios, Unwanted Guests, and Damaging Masking Introduction: Welcome to the circus of NDIS support, where support workers walk a tightrope of balancing ratios, managing unwanted guests, and enduring the exhausting performance of masking their frustrations. In this blog post, we'll dive into the ring of ethical dilemmas and the toll it takes on clients like me, stuck in the one-to-three ratio debacle. Walking the Tightrope of Ratios: Picture this: I'm assigned a one-to-three ratio, a delicate equilibrium meant to ensure personalized care and support. But alas, more often than not, I find myself entertaining three guests in my humble abode, courtesy of a support worker's reluctance to trigger someone. So here I am, juggling the needs of three instead of the intended trio, with my autonomy hanging by a thread. The Uninvited Guests: In this circus of chaos, the uninvited guests aren't clowns or acrobats—they're the consequences of br

person centered care in reality

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Introduction: In the realm of caring for individuals with disabilities, striking a balance between the medical model and person-centered care is crucial. This holistic approach recognizes the multifaceted nature of human experience and aims to address the individual's unique needs while navigating behaviors of concern and challenging behaviors. In this blog post, we'll explore how the holistic model integrates both perspectives and offers comprehensive support for individuals with disabilities. Understanding the Medical Model vs. Person-Centered Care: The Medical Model: The medical model traditionally focuses on diagnosing and treating medical conditions or impairments. It views disability as a deficiency or deviation from the norm, often emphasizing medical interventions and symptom management. While this approach is valuable for addressing physical health concerns, it may overlook the broader psychosocial aspects of disability and the individual's preferences and autonomy

Support workers and disablity services agenices we need to talk.

  It’s bright and early in my housing facility and this is a good thing, I have checked off what I need to do, and when the others have gone to their activities I will start recording and studying, but I am finding that I must be doing something right as people who have never experienced disability either in themselves or in a family member or a fired seem to get very offended when I am suggesting easy things that need to change in people who work as support workers as I am finding that there is I thought two groups of people but I am finding it’s three, people who needed a job and have come into support work and do the job, people who have experience of disability and got attracted to the job and people who have a real passion for helping people with a disability and want to make a difference. The first two if they are willing and able to learn the difference’s between work and a calling it’s great but for those who just consider this a job and turn up on the dot of time, I am als

From Shocked Pikachu Faces to Fair Pay: A Call for Justice in Disability Representation

  Alright, folks, let's dive into a topic that's long overdue for some real talk: paying disabled content creators fairly. Yep, you heard me right. Disabled creators are out here grinding, just like everyone else, and shockingly enough, we have bills to pay too. Now, let's address the elephant in the room: that classic "shocked Pikachu face" people make when they find out disabled creators expect fair compensation for their work. Picture it: you tell someone you're disabled and creating content for a living, and suddenly they look like Pikachu just got hit by a bolt of lightning. Seriously, it's not a cute look. It's not endearing. It's just plain insulting. But wait, here comes the next blow: "But your content is so niche." Ah, yes, the old "niche" argument. Funny how suddenly our content is "niche" when it comes time to talk about fair compensation, but it's "inspiring" enough for everyone to share on t

Title: Protecting Privacy and Valuing Expertise: Why Sharing NDIS or Care Plans Isn't Always Appropriate

In recent years, there has been a growing awareness and advocacy for the rights and inclusion of people with disabilities. With government-funded support services like the National Disability Insurance Scheme (NDIS) in place, individuals with disabilities have gained greater access to necessary resources and care. However, amidst this progress, it's crucial to address a concerning trend – the expectation for individuals to share their NDIS or care plans with strangers, often without proper consideration for privacy or compensation for expertise. Privacy is a fundamental right for everyone, including people with disabilities. NDIS or care plans are sensitive documents outlining a person's needs, goals, and support requirements. Sharing such personal information with strangers, particularly those who aren't directly involved in providing care or support, can pose risks to privacy and confidentiality. Moreover, many individuals with disabilities face challenges in society, inc

Eleplisy isn't just seizure's

  Title: Exploring the Link Between Epilepsy, Parasomnias, and Nocturnal Eating Introduction: Living with epilepsy entails navigating various challenges, from managing seizures to addressing associated conditions like parasomnias and nocturnal eating behaviors. These intertwined issues can significantly impact an individual's quality of life, requiring a comprehensive understanding and tailored approaches for effective management. In this blog post, we delve into the connections between epilepsy, parasomnias, and nighttime eating, exploring their complexities and offering insights for those affected. Understanding Epilepsy: Epilepsy is a neurological disorder characterized by recurrent seizures, which are sudden, uncontrolled electrical disturbances in the brain. Seizures can manifest in various forms, ranging from brief lapses in awareness to convulsions and loss of consciousness. While the exact causes of epilepsy can vary, factors such as genetics, brain injury, infections, and